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Husband,Wife w/MS
Question:
MS sufferers walk to find elusive cure Effort to raise money for research kicks off at five metro area sites Mary Lou Pickel – Staff Sunday, May 14, 2000 Cherry Zimmer knew the signs of multiple sclerosis. Her husband came down with the debilitating neuromuscular disease when he was 33. So when Zimmer tried to brush her hair one morning and lost control of her arm, she got a dreadful feeling. "Oh my God," she said. "I’m just like him." The chances of both a husband and wife contracting multiple sclerosis, a noncontagious disease, are exceedingly slim. The Zimmers of Duluth, who are math and engineering whizzes, put the odds at 1 in 640,000. The chances of finding a cure for the disease that afflicts 200 people every week are also slim. That’s why the Zimmers and about 150 others showed up Saturday for the Multiple Sclerosis Walk in Lawrenceville. It was one of five walks throughout the metro area Saturday — others were in Atlanta, Jonesboro, Marietta and Stone Mountain — organized by the National Multiple Sclerosis Society’s Georgia Chapter. The goal was to raise money for research and spread awareness of the illness. About 700 cities nationwide have organized walks. "Somewhere there’s going to be a dollar, and that’s the dollar that’s going to make a difference," Zimmer said. The Lawrenceville crowd raised $22,205 Saturday, organizers said, and they expect more donations to trickle in. For Cherry Zimmer, 45, walking the 3-mile course was a triumph. For several years she needed a wheelchair. Then she graduated to a cane, and now she walks on her own, thanks to regular workouts and a drug called Avonex that she started taking almost immediately after diagnosis. The drug minimizes damage to the nerves, she said. Multiple sclerosis scars the brain and spine, causing numbness and blurred vision and interfering in patients’ control of their muscular responses. "It’s like running a wire with no insulation among other wires," Craig Zimmer, 47, said. "You get cross-talk." Cherry Zimmer still can’t walk toe to toe because her balance is off. Her husband has lost feeling in his limbs, and although he can walk a little and drive a car, he relies on a wheelchair to get around because he becomes exhausted quickly. They’ve installed elevators and wider doors in their home and each drives a large van. Stress can trigger episodes in which the symptoms worsen, they said. But the couple said support groups have helped, as well as their two cats. "I’ve gotten past the ‘MS is the controlling factor in my life’ stage," Cherry Zimmer said.
Response:
In article <3920468…@oracle.zianet.com
, "cowboy" <mscow…@zianet.com
writes:
. For Cherry Zimmer, 45, walking the 3-mile course was a triumph. For several years she needed a wheelchair. Then she graduated to a cane, and now she walks on her own, thanks to regular workouts and a drug called Avonex that she started taking almost immediately after diagnosis. The drug minimizes damage to the nerves, she said.
This makes it sound like you the regular workouts and Avonex got her out of the chair, when most likely it was an exaccerbation that has remitted. Kathi
Response:
Or she had no business being in the chair in the first place. One of my aunts told me a story about meeting a person who claimed that Tai Chi got her out of a w/c. My aunt wanted my opinion of the miracles of Tai Chi, but all I told *her was that the MS person had taken to the w/c unnecessarily and had to strengthen her unused muscles, etc. This sounds like a similar situation. Gaylan "Kathi Matthews" <kamatth…@aol.com
wrote in message
news:20000516064406.00689.00015269@nso-ch.aol.com… – Hide quoted text — Show quoted text -
In article <3920468…@oracle.zianet.com, "cowboy" <mscow…@zianet.com writes: . For Cherry Zimmer, 45, walking the 3-mile course was a triumph. For
several
years she needed a wheelchair. Then she graduated to a cane, and now she walks on her own, thanks to regular workouts and a drug called Avonex This makes it sound like the regular workouts and Avonex got her out of
the
chair, when most likely it was an exaccerbation that has remitted. Kathi
Response:
On Tue, 16 May 2000 10:23:18 -0300, "Alex and Gaylan" <alexandgay…@email.msn.com
wrote: Or she had no business being in the chair in the first place. One of my aunts told me a story about meeting a person who claimed that Tai Chi got her out of a w/c. My aunt wanted my opinion of the miracles of Tai Chi, but all I told *her was that the MS person had taken to the w/c unnecessarily and had to strengthen her unused muscles, etc. This sounds like a similar situation. Gaylan
In some parts of the country, w/c mean water closet, as in toilet facility. I attend a class in yoga, tailored for folks with ms. It does strengthen muscle groups. Each in the class must find just what exercises can be done without causing undue pain. But on top of that, each must be willing to challenge the threshold of pain, slowly and with baby steps. And of course, each must then apply the various yoga exercises during the week. While there is no cure at this time for ms, management of the symptoms is made a tad easier. Donn
Response:
In article <diu2is0ptj34avqkhshc2konk4mf44n…@4ax.com
, dciREM…@cheetah.net
writes:
And of course, each must then apply the various yoga exercises during the week. While there is no cure at this time for ms, management of the symptoms is made a tad easier.
Are you still walking unaided Donn? Kathi
Response:
On 16 May 2000 21:38:29 GMT, kamatth…@aol.com (Kathi Matthews) wrote:
In article <diu2is0ptj34avqkhshc2konk4mf44n…@4ax.com, dciREM…@cheetah.net writes: And of course, each must then apply the various yoga exercises during the week. While there is no cure at this time for ms, management of the symptoms is made a tad easier. Are you still walking unaided Donn? Kathi
Kathi, Walking, if you call it that, is difficult after 50 yards on a good day. I use a cane for these moments; otherwise, I use my "sporty wheelchair." As I’ve gotten into the regimen of doing exercises, I have noticed a bit more strength in my upper body and a bit more control of my legs. As time has gone on, the control and strength diminish but I theorize that I’m not losing all as fast if I were to do nothing. One of the spin-offs, I have had less periods of "down time," and when "down," less severe problems. But this is what I do. Several of my former classmates have transferred to water exercise programs as their physical abilities to do the yoga routines diminished. As I "progress," I’ll probably follow suit. Donn
Response:
I go to MS adapted yoga classes. They’re great! – Hide quoted text — Show quoted text -dciREM…@cheetah.net wrote:
On 16 May 2000 21:38:29 GMT, kamatth…@aol.com (Kathi Matthews) wrote: In article <diu2is0ptj34avqkhshc2konk4mf44n…@4ax.com, dciREM…@cheetah.net writes: And of course, each must then apply the various yoga exercises during the week. While there is no cure at this time for ms, management of the symptoms is made a tad easier. Are you still walking unaided Donn? Kathi Kathi, Walking, if you call it that, is difficult after 50 yards on a good day. I use a cane for these moments; otherwise, I use my "sporty wheelchair." As I’ve gotten into the regimen of doing exercises, I have noticed a bit more strength in my upper body and a bit more control of my legs. As time has gone on, the control and strength diminish but I theorize that I’m not losing all as fast if I were to do nothing. One of the spin-offs, I have had less periods of "down time," and when "down," less severe problems. But this is what I do. Several of my former classmates have transferred to water exercise programs as their physical abilities to do the yoga routines diminished. As I "progress," I’ll probably follow suit. Donn
Response:
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