Question:

Hi!         If you’ve re-subscribed since Jan. 16, you shouldn’t have a problem.  We were supposed to subscribe to undelete (I think) prior to the 15th.  I did, but still somehow managed to lose the list.  As soon as I realized that my undelete thingie apparently hadn’t gone thru, I re-sub’d to the list and while it took a little longer than normal to get notification, I’ve had not problems since.         Have you had a lot of posts bounced back to you?  I think (Oh, I keep doing that!) Chanoch said something about unsubing folks with a lot of bounced messages.  I know bopkiss about the technical stuff, but I hope this helps.         Hugs n prayers,         P. At 22:37 1/19/97 PST, you wrote:

Can someone help me?  It seems that about every two or three weeks I get removed from the MS list.  What is happening here?  Yesterday I sent a command to set ack and repro, and got a response that I was not subscribed

to MSLIST-L list.  This is the third time this has happened since the

beginning of December.  Did something happen with the switch to the new address that I missed out on?  Also, I seem to recall someone giving

directions to delete a message regarding unsubscribing immediately after

subscribing.  Is this because of a glitch in the system?  HELP!!  I’m really getting tired of missing out on messages! –delaine n

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Some days you’re the pigeon and some days you’re the statue.                ;)               PamY Spokesmom for Jennie who has MS. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Response:

 <0348132F0FD5100A*/c=us/admd=attmail/prmd=gov+usace/o=NPD01/ou=CENPD-ET-OE/ s=Ma  zurkiewicz/g=Frank/i=J/@MHS

Date: 30 Jan 1997 19:58:09 Z From: Frank J Mazurkiewicz <Frank.J.Mazurkiew…@NPD01.usace.army.mil

To: "MSLIST-L%TECHNION.bit…@taunivm.tau.ac.il"  <MSLIST-L%TECHNION.bit…@taunivm.tau.ac.il

(Return requested) (Receipt

 notification requested),     "MSLIST-L-requ…@TECHUNIX.TECHNION.AC.IL"  <MSLIST-L-requ…@TECHUNIX.TECHNION.AC.IL

(Return requested) (Receipt

 notification requested),     "MSLIS…@TECHNION.TECHNION.AC.IL" <MSLIS…@TECHNION.TECHNION.AC.IL

 (Return requested) (Receipt notification requested) Return-Receipt-To: Frank J Mazurkiewicz  <Frank.J.Mazurkiew…@NPD01.usace.army.mil

Subject: SIGNON   MSLIST-L MIME-Version: 1.0       SIGN ON   MSLIST-L

Response:

        to:  lists…@techniux.technion.ac.il no subject         message body   set mslist-l repro         then you all who want to will see your own messages.              __..–”“—….___   _…_    __        /// //_.-’    .-/";  `        “<._  “.”_ `.              luv and meow        ///_.-’ _..–.’_                        `( ) ) // //             susan        / (_..-’ // (< _     ;_..__               ; `’ / ///        / // // //  `-._,_)’ // / “–…____..-’ /// / //         Dreams are the touchstones of our characters.                 Thoreau (1817-1862)

Response:

set NOMAIL

Response:

        Just wanted to tell all of you that I had a very good day today. I took my pills before the pain started (as someone somewhere suggested), and had company over.  This man and woman are about my age with two sons 4 and 5 and half.         they rent my families home in Massachusettes, my mom is in the service in england and he is in the service here, but comes from Ohio.         Today we went to the Shaker Village in Canterbury, NH and had a fairly good tour. I was able to walk part of it, I so desperatly wanted the excersize,  then needed to be wheeled.  Well something very funny happened when her husband, also named John, decided to wheel me, but i’m not ready to divulge that yet, because I have the makings of another funny short story.         I’m sunburned, exhausted and feeling sort of a let down.  I rarely go out, always home, unless i do a few errands. I guess that’s natural to feel that way. I had a day like I used to have except with a wheelchair. One of their sons is my protector, follows me everywhere, the younger is just now getting used to me.         They have been in my parents house for two years and between surgeries, seizures, and shingles I am finally getting to know them. they are supposed to transfer out at the end of the summer, I almost cried.  Well he’s asking for an extension, and we are praying for it.         there is so much i could show them, so much to do that my husband and I don’t do anymore.  I know John loves me, but the working and the schooling doesn’t leave much time for play.         So today was a very happy day, I’m paying for it a little now, but so what?  I would like to hear other peoples thoughts on possible reasons for feeling let down now almost depressed. I could just be very tired, but would like to read others experiences, Please!         thanks and you all take care!              __..–”“—….___   _…_    __        /// //_.-’    .-/";  `        “<._  “.”_ `.              luv and meow        ///_.-’ _..–.’_                        `( ) ) // //             susan        / (_..-’ // (< _     ;_..__               ; `’ / ///        / // // //  `-._,_)’ // / “–…____..-’ /// / //         Dreams are the touchstones of our characters.                 Thoreau (1817-1862)

Response:

- Hide quoted text — Show quoted text -

set NOMAIL

Response:

        to one and all setting commands   to: lists…@techniux.technion.ac.il then in message    set mislist-l nomail         to receive again send to same address i wrote,  set mslist-l mail         we are dealing with computers here and the way you did it it didn’t recognize it as a command. At 04:36 AM 11/20/96 -0400, you wrote:

set NOMAIL

             __..–”“—….___   _…_    __        /// //_.-’    .-/";  `        “<._  “.”_ `.              luv and meow        ///_.-’ _..–.’_                        `( ) ) // //             susan        / (_..-’ // (< _     ;_..__               ; `’ / ///        / // // //  `-._,_)’ // / “–…____..-’ /// / //         Dreams are the touchstones of our characters.                 Thoreau (1817-1862)

Response:

On 17 Nov 96 at 2:12, s_guziejka wrote: – Hide quoted text — Show quoted text -

        Just wanted to tell all of you that I had a very good day         today. I took my pills before the pain started (as someone somewhere suggested), and had company over.  This man and woman are about my age with two sons 4 and 5 and half.         they rent my families home in Massachusettes, my mom is in         the service in england and he is in the service here, but comes from Ohio.         Today we went to the Shaker Village in Canterbury, NH and         had a fairly good tour. I was able to walk part of it, I so desperatly wanted the excersize,  then needed to be wheeled.  Well something very funny happened when her husband, also named John, decided to wheel me, but i’m not ready to divulge that yet, because I have the makings of another funny short story.         I’m sunburned, exhausted and feeling sort of a let down.  I         rarely go out, always home, unless i do a few errands. I guess that’s natural to feel that way. I had a day like I used to have except with a wheelchair. One of their sons is my protector, follows me everywhere, the younger is just now getting used to me.         They have been in my parents house for two years and between surgeries, seizures, and shingles I am finally getting to know them. they are supposed to transfer out at the end of the summer, I almost cried.  Well he’s asking for an extension, and we are praying for it.         there is so much i could show them, so much to do that my         husband and I don’t do anymore.  I know John loves me, but the working and the schooling doesn’t leave much time for play.         So today was a very happy day, I’m paying for it a little         now, but so what?  I would like to hear other peoples thoughts on possible reasons for feeling let down now almost depressed. I could just be very tired, but would like to read others experiences, Please!         thanks and you all take care!

Susan, I’m glad you had such a good day.  I think you are tired, but also maybe a little fearful that you won’t be able to have such fun again. A little like late Christmas afternoon. I think it is important to get you out of the house as much as possible.  It doesn’t have to be big stuff.  I enjoy the Mall — I never was much of a shopper, but I love being where other people are. I also am having a wonderful time researching my book in the library. This is made possible by my electric chair and a van to transport it. I am free to go where I want to and it makes a big difference. Can you drive?  Check out the malls and supermarkets for scooters. Talk to your doctor about a chair that doesn’t need a "pusher". Even if you can’t fix up something as fancy as a chair, take a break to go out to lunch or to the library.  It will make a difference. Kate M. k…@ix.netcom.com

Response:

- Hide quoted text — Show quoted text -s_guziejka wrote:

        Just wanted to tell all of you that I had a very good day today. I took my pills before the pain started (as someone somewhere suggested), and had company over.  This man and woman are about my age with two sons 4 and 5 and half.         they rent my families home in Massachusettes, my mom is in the service in england and he is in the service here, but comes from Ohio.         Today we went to the Shaker Village in Canterbury, NH and had a fairly good tour. I was able to walk part of it, I so desperatly wanted the excersize,  then needed to be wheeled.  Well something very funny happened when her husband, also named John, decided to wheel me, but i’m not ready to divulge that yet, because I have the makings of another funny short story.         I’m sunburned, exhausted and feeling sort of a let down.  I rarely go out, always home, unless i do a few errands. I guess that’s natural to feel that way. I had a day like I used to have except with a wheelchair. One of their sons is my protector, follows me everywhere, the younger is just now getting used to me.         They have been in my parents house for two years and between surgeries, seizures, and shingles I am finally getting to know them. they are supposed to transfer out at the end of the summer, I almost cried.  Well he’s asking for an extension, and we are praying for it.         there is so much i could show them, so much to do that my husband and I don’t do anymore.  I know John loves me, but the working and the schooling doesn’t leave much time for play.         So today was a very happy day, I’m paying for it a little now, but so what?  I would like to hear other peoples thoughts on possible reasons for feeling let down now almost depressed. I could just be very tired, but would like to read others experiences, Please!         thanks and you all take care!

(signature file snipped) Susan, This sounds really familiar.  Nella has good days like you described, but has to hoard her energy, plan for them, and yes, take her pain pills before it starts hurting.  When the fun time is over, she gets a little down.  However, it is nowhere near as down as she gets from an extended period of no fun times! Why does she (or you) get down after a good time?  I can think of several plausible explanations, but don’t know which have any truth to them:  1.  play time is over, back to the real world  2.  she hurts, and maybe wouldn’t have hurt without the fun time  3.  knowledge that it’s another long time with planning and hoarding energy before she can have that much fun again  4.  regrets of not having been able to do _more_ in the time she had  5.  possibly some physiological or neurological cause related to MS? In spite of the almost predictable low after the fun times, Nella would not give up the fun times to avoid the low.  Having seen how bad low can be during an extended period with no fun days, I have to believe that Nella has the right attitude on this. Kevin Just trying to cope with my wife’s MS without making the emotional problems worse! — It is impossible to make anything foolproof,   because fools are so ingenious. — Eleventh Corollary to Murphy’s Law

Response:

Yep, but i mentioned getting duplicates once before and all mail stopped so I’m not complaining anymore!!  It may just be getting bugs worked out with new server. ekd On 15 Nov 96 at 9:23, Kathy Gnas wrote: – Hide quoted text — Show quoted text -

For some reason today I got a group of messages from Nov. 5-6 that I had previously read and deleted. Did anyone else experience this?

Response:

At 09:23 11/15/96 +0200, you wrote:

For some reason today I got a group of messages from Nov. 5-6 that I had previously read and deleted. Did anyone else experience this?

I’ve been getting a lot of dupes and old messages over the last few days too.  It probably has something to do with the new set up – maybe back-tracking a little to make sure we didn’t miss anything while the transfer mess was going on.  A wee bit annoying, but a small price to pay – and it keeps my trash bin happy with a full tummy . P. -+++- -+++- -+++- -+++- -+++- -+++-                PamY Some days you’re the pigeon and some days you’re the statue.                 -+++- -+++- -+++- -+++- -+++- -+++-

Response:

I read yesterday of a male and female couple who live the alternative lifestyle. I either did not get or over looked the original message asking to hear from others living the alternative lifestyle who also suffer from MS. Just to let you know, yes, we are here also.  Please reply by direct e-mail as I don’t know how to contact you.          Pam and Lea    E-mail fam…@iquest.net

Response:

For some reason today I got a group of messages from Nov. 5-6 that I had previously read and deleted. Did anyone else experience this?

Response:

Hi Susan! I am SO glad you had a good day today–you were certainly due for one.  We must have been on the same wavelength–I had a good day too (read prev. post) for the first time in a while. I’m paying for it too, but I feel great that I got to get out for a while. You do sound like you’re just tired–I know I am!  Try not to analyze it too much.  Just cherish the day you had.  I can’t wait to hear the funny story! Love, Donna Pray not for a lighter burden, but for a stronger back. ———-

From: s_guziejka <s_guzie…@mail.conknet.com To: thefo…@msrevealed.org Cc: MSLIS…@techunix.technion.ac.il; ae…@dial.pipex.com;

dmcl…@cybercast-tn.com; Ron_Croo…@ccmail.orl.mmc.com; spuh…@bright.net – Hide quoted text — Show quoted text -

Subject: Date: Saturday, November 16, 1996 6:16 PM         Just wanted to tell all of you that I had a very good day today.

I

took my pills before the pain started (as someone somewhere suggested),

and

had company over.  This man and woman are about my age with two sons 4

and 5

and half.         they rent my families home in Massachusettes, my mom is in the service in england and he is in the service here, but comes from Ohio.         Today we went to the Shaker Village in Canterbury, NH and had a fairly good tour. I was able to walk part of it, I so desperatly wanted

the

excersize,  then needed to be wheeled.  Well something very funny

happened

when her husband, also named John, decided to wheel me, but i’m not ready

to

divulge that yet, because I have the makings of another funny short

story.

        I’m sunburned, exhausted and feeling sort of a let down.  I

rarely

go out, always home, unless i do a few errands. I guess that’s natural to feel that way. I had a day like I used to have except with a wheelchair. One of their sons is my protector, follows me everywhere, the younger is just now getting used to me.         They have been in my parents house for two years and between surgeries, seizures, and shingles I am finally getting to know them. they are supposed to transfer out at the end of the summer, I almost cried.

Well

he’s asking for an extension, and we are praying for it.         there is so much i could show them, so much to do that my husband and I don’t do anymore.  I know John loves me, but the working and the schooling doesn’t leave much time for play.         So today was a very happy day, I’m paying for it a little now,

but

so what?  I would like to hear other peoples thoughts on possible reasons for feeling let down now almost depressed. I could just be very tired,

but

would like to read others experiences, Please!         thanks and you all take care!              __..–”“—….___   _…_    __        /// //_.-’    .-/";  `        “<._  “.”_ `.              luv

and meow

       ///_.-’ _..–.’_                        `( ) ) // //

susan

       / (_..-’ // (< _     ;_..__               ; `’ / ///        / // // //  `-._,_)’ // / “–…____..-’ /// / //         Dreams are the touchstones of our characters.                 Thoreau (1817-1862)

Response:

please remove me from the list. I didn’t realize that I would get so much email. I can’t keep track. Thanks. Tommy Rupinski

Response:

please remove me from the list. I didn’t realize that I would get so much email. I can’t keep track. Thanks. Tommy Rupinski

Hi Tommy, If you are really wanting to be removed from the list, send a message to Technion as below.

**************************************

To: LISTS…@TECHNION.TECHNION.AC.IL Subject: Text: SIGNOFF MSLIST-L Sorry to see you leave, but hope this will help. ((((((((((((((((hugs))))))))))))))))))))))))))))))))))              B.J.        M.S.- THE DISEASE OF USED TO BE.                *HUGS*   For those looking for first-hand accounts of experiences with MS, try:        http://stripe.colorado.edu/~leonarm/ms         and don’t forget to leave your experiences too!     Take charge of your health-care, you are the boss and         you are the one the meds./treatments affect.

Response:

Tommy: This is Loretta Glenons husband, in order to unscribe fron MSlist you must send a request worded this way UNSCRIBE MSLIST. Thats the only way to get off it. – Hide quoted text — Show quoted text -

please remove me from the list. I didn’t realize that I would get so much email. I can’t keep track. Thanks. Tommy Rupinski

Response:

        I think you sent the command to the wrong address, but I’ll let Chris or Chanoch handle it from their end. At 10:31 AM 1/9/97 +0000, you wrote: – Hide quoted text — Show quoted text -

unsub mslist-delete           .==,_          .===,_`        .====,_ `      .====,__  —     .==-,`~.           `:`.__, "Look on my dice, ye Mighty   —      `~~=-.             /^^^           and DESPAIR!"     —       `~~=.         /                  `~.       /                    ~. ____./                      `.=====)                   ___.–~~~–.__         ___.–~~~              ~~~—.._|/         ~~~"                             / Martin Lee [aka YLee] ========================================================================== === voice mail:             01535-670368 mobile – esp. weekends! 0831-493440 75 Cartmel Road Keighley West Yorkshire ENGLAND BD21 2JB

              ——————————————————————                                   There is always a little piece                /_____/      of heaven in the disaster-area!       ==-=-/  o   o  =-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=======       === ( ==  ^  == )         ===       ===   )        (        ==          luv and meow susan       ===  (          )      ===-( (  )    (  ) )=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-== ==         (__(__) _(__)__)              s_guzie…@conknet.com ———————————————————————

Response:

- Hide quoted text — Show quoted text -susan guziejka wrote:

                   Maureen that’s not the way to do it, here is what I did since they are changing over or something. TO: listse…@techunix.technion.ac.il nothing in subject message body  unsub mslist-delete             I know it might seem strange, did it this AM and I’m still on the list.         one has to be very carfull of typos, and make sure you follow my example closely, there is a space and there is a hyphon.         let me know if it works! please keep me on the ms list. thanks,  Maureen               ——————————————————————                                   There is always a little piece                /_____/      of heaven in the disaster-area!       ==-=-/  o   o  =-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=======       === ( ==  ^  == )         ===       ===   )        (        ==          luv and meow susan       ===  (          )      ===-( (  )    (  ) )=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-== ==         (__(__) _(__)__)              s_guzie…@conknet.com ———————————————————————

I’ve written before, does that automatically make me a member on the list??      Janet

Response:

please keep me on the ms list. thanks,  Maureen

Response:

Jan. 7, 1997  Please keep me on the MSLIST-L  Sincerely,  Sharon Marie Plain <smpga…@onslowonline.net

Response:

                   Maureen that’s not the way to do it, here is what I did since they are changing over or something. TO: listse…@techunix.technion.ac.il nothing in subject message body  unsub mslist-delete             I know it might seem strange, did it this AM and I’m still on the list.         one has to be very carfull of typos, and make sure you follow my example closely, there is a space and there is a hyphon.         let me know if it works! please keep me on the ms list.

thanks,  Maureen

              ——————————————————————                                   There is always a little piece                /_____/      of heaven in the disaster-area!       ==-=-/  o   o  =-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=======       === ( ==  ^  == )         ===       ===   )        (        ==          luv and meow susan       ===  (          )      ===-( (  )    (  ) )=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-== ==         (__(__) _(__)__)              s_guzie…@conknet.com ———————————————————————

Response:

unsub mslist-delete            .==,_           .===,_`         .====,_ `      .====,__   —     .==-,`~.           `:`.__, "Look on my dice, ye Mighty    —      `~~=-.             /^^^           and DESPAIR!"      —       `~~=.         /                   `~.       /                     ~. ____./                       `.=====)                    ___.–~~~–.__          ___.–~~~              ~~~—.._|/          ~~~"                             / Martin Lee [aka YLee] =========================================================================== == voice mail:             01535-670368 mobile – esp. weekends! 0831-493440 75 Cartmel Road Keighley West Yorkshire ENGLAND BD21 2JB

Response:

Jan. 3, 1996 Dear Martin, Traveling is a chore I do know, expierence we learn! Master some but not all! I can not reach the book I want to share, it is from a car manufacturer on Disability, it tells you what is assessable in America! Try maufacturers in your areas, I am sure they may have something! As well North Carolina has one Access North Carolina, currently not making them, funding reasons We had Major Hurricaines hit this past year. I do have a question, wher do all of you find how to do art work designs on computers, using the key board? I have yet to figure this out I tried one didn’t look too good! Take care, Miss Sharon Marie Plain <smpga…@onslowonline.net________________— ______________________________________________________________________ – Hide quoted text — Show quoted text -

Hi! YOU WROTE: Date:    Mon, 23 Dec 1996 05:51:36 GMT From:    FBImostwanted < Subject: Travelling with MS Does anyone have any information on books or agencies to contact regarding world travel.  I’m in a wheelchair most of the time but still can manage a few steps.  Any info would be greatly appreciated. =================================================================== During the last three years I have travelled in my wheelchair by myself to Greece, Denmark, Istanbul, Chicago and Detroit and here is what I have found: Be *very* specific when booking hotel accomodation as to kind of access/room required. In both  Greece and Turkey although specifying a room for the disabled there was no real idea about what that meant and I had steps and othe hazards to negotiate. The US and Western Europe present resent few problems but you need, for instance, to mention what kind of ‘chair you have, how far you can walk etc etc. Then let the travel agent do the rest. Make sure that the airline knows about all these problems. They will usually have the use of airport Special Services who will arrange escort, helpers etc if needed. Often someone will be allocated to you, will get your baggage checked in and get you on the airplane. Make sure they alert Special Services at your destination so that they meet you at the aircrft door on arrival. AVOID HEATHROW IF AT ALL POSSIBLE! – or at least be very thorough with the above and insist upon your rights!! Take plenty of small bills for tips! Reaaly, it is just a matter of very fine planning!! Have fun and travel well!!            .==,_           .===,_`         .====,_ `      .====,__   —     .==-,`~.           `:`.__, "Look on my dice, ye Mighty    —      `~~=-.             /^^^           and DESPAIR!"      —       `~~=.         /                   `~.       /                     ~. ____./                       `.=====)                    ___.–~~~–.__          ___.–~~~              ~~~—.._|/          ~~~"                             / Martin Lee [aka YLee] =========================================================================== == voice mail:             01535-670368 mobile – esp. weekends! 0831-493440 75 Cartmel Road Keighley West Yorkshire ENGLAND BD21 2JB

Response:

Hi! YOU WROTE: Date:    Mon, 23 Dec 1996 05:51:36 GMT From:    FBImostwanted < Subject: Travelling with MS Does anyone have any information on books or agencies to contact regarding world travel.  I’m in a wheelchair most of the time but still can manage a few steps.  Any info would be greatly appreciated. =================================================================== During the last three years I have travelled in my wheelchair by myself to Greece, Denmark, Istanbul, Chicago and Detroit and here is what I have found: Be *very* specific when booking hotel accomodation as to kind of access/room required. In both  Greece and Turkey although specifying a room for the disabled there was no real idea about what that meant and I had steps and othe hazards to negotiate. The US and Western Europe present resent few problems but you need, for instance, to mention what kind of ‘chair you have, how far you can walk etc etc. Then let the travel agent do the rest. Make sure that the airline knows about all these problems. They will usually have the use of airport Special Services who will arrange escort, helpers etc if needed. Often someone will be allocated to you, will get your baggage checked in and get you on the airplane. Make sure they alert Special Services at your destination so that they meet you at the aircrft door on arrival. AVOID HEATHROW IF AT ALL POSSIBLE! – or at least be very thorough with the above and insist upon your rights!! Take plenty of small bills for tips! Reaaly, it is just a matter of very fine planning!! Have fun and travel well!!            .==,_           .===,_`         .====,_ `      .====,__   —     .==-,`~.           `:`.__, "Look on my dice, ye Mighty    —      `~~=-.             /^^^           and DESPAIR!"      —       `~~=.         /                   `~.       /                     ~. ____./                       `.=====)                    ___.–~~~–.__          ___.–~~~              ~~~—.._|/          ~~~"                             / Martin Lee [aka YLee] =========================================================================== == voice mail:             01535-670368 mobile – esp. weekends! 0831-493440 75 Cartmel Road Keighley West Yorkshire ENGLAND BD21 2JB

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set mslist-l repro

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 Hi! I have just joined this list.  It looks great.  I have had MS for nearly 22 years. While scanning the Internet two days ago I came across some information concerning the possible cause of MS which I found very exciting.  The theory is that the blood-brain barrier is letting in white blood cells which it should not be allowing.  It is these which are attacking the myelin and causing the damage.  If this theory is correct we do not to look any further for a virus or a bacteria as the culprit.  The paper goes on to report that the damage to the blood-brain barrier can be corrected by taking flavonoid supplements which can be obtained from any health food store.  If this proves correct it will prevent any further damage to the myelin and it will assist in reducing inflammation associated with a relapse.  Please read the web page whose address I enclose herewith. http://spider.lloyd.com/~tstout/articles/multiple-sclerosis.shtml Adam

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Hi Sharon, Good luck on your new job!! Take care, Dawn Sharon L. Dean wrote:

                               <snip

I’m looking for a place where I can stay and have people observe – Hide quoted text — Show quoted text -

me.  I have MS, but I’m having other problems as well, plus I just found out I’m getting a job offer.  I have to get the other things cleared up!!!!!

Response:

Hi ! Just a short note to say we Have a new server the old address was

cod…@auracom.com<

THE NEW ADDRESS IS

Jan…@netcom.ca

Hope all is going well  and  Keep Smiling Jane

Response:

Reply-To: Don….@ncal.kaiperm.org Date: Tuesday, 18 February 1997 10:36am PT To: mslis…@technion.technion.ac.il From: Don.Yee@EMC2NCAL Subject: subscribe I lost the e-mail address to subscribe to the ms-list can someone e-mail me the address.                   Thanks Donald W. Yee

Response:

I’m sure other’s will respond, but in case we’re all thinking the same thing, here goes:         Send an e-mail to:         LISTS…@TECHUNIX.TECHNION.AC.IL         Leave the subject blank.         In the body, type:         Subscribe MSLIST-L Yourfirstname Yourlastname That’s it. Take care. P. At 16:27 2/18/97 -0800, you wrote:

Reply-To: Don….@ncal.kaiperm.org Date: Tuesday, 18 February 1997 10:36am PT To: mslis…@technion.technion.ac.il From: Don.Yee@EMC2NCAL Subject: subscribe I lost the e-mail address to subscribe to the ms-list can someone e-mail me the address.                  Thanks Donald W. Yee

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Some days you’re the pigeon and some days you’re the statue.              PamY Spokesmom for Jennie who has MS. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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        Reply to:   RE

I was thinking …

Eddie, I know how you feel. There is a part of me that believes that I will not be asked to carry any burden that I cannot carry. And then there is another side of me that wants to grab God by the lapels and scream "Pick up the phone, call me, give me a REASON!". I guess faith was not intended to be easy. Tom Benson ————————————– …snipped… I was told I could write what I wanted, if I didn’t impinge my thoughts on anyone – I don’t want another week as the last one. Here goes … For ev’ry pain, that we must bear, For ev’ry burden, ev’ry care, There’s a reason. For ev’ry grief, that bows the head, For ev’ry teardrop that is shed, There’s a reason. For ev’ry hurt, for ev’ry plight, For ev’ry lonely, pain-racked night, There’s a reason. But if we trust God, as we should, It all will work out for our good, HE KNOWS THE REASON. Eddie B – Hide quoted text — Show quoted text -

is the glass half empty, or twice as large as it needs to be? <<

Response:

From: "Michael Watkins"  <MICHA…@ksg1.harvard.edu

To: "Autoimmune Research" <Autoimmune_Resea…@ksg1.harvard.edu

Subject: Judge denies Berlex restraining order Date: Wed, 1 May 1996 10:07:18 EST Reply-to: Autoimmune_Resea…@ksg1.harvard.edu Sender: Mai…@ksg1.harvard.edu May 1–Biogen Inc. is breathing a sigh of relief after a U.S. judge denied Berlex Laboratories’ request for a temporary restraining order to bar the FDA from approving a Biogen drug to treat multiple sclerosis. US District Court Judge James Robertson’s decision eliminates the last hurdle for Biogen to gain required U.S. Food and Drug Administration approval to sell its once-a-week injectable drug, Avonex. Approval is expected within the next four weeks. Once approved, Avonex will compete with Berlex’s Betaseron, a three-times-a-week injectable drug that has had disappointing sales since it entered the market in late 1993. "This lawsuit is a clear sign of desparation on their (Berlex) part in that they fully realize what could happen to them competitively," said Jim Vincent, Biogen president. Yesterday’s decision pushed Biogen’s stock up 2 5-8 to close at 65 7-8 on the Nasdaq. On Friday, Wayne, N.J.-based Berlex filed suit against the FDA claiming any approval of Avonex would violate its seven-year exclusive marketing right under the Orphan Drug Act. Granting approval of Avonex, which Berlex maintains is functionally equivalent to Betaseron, would violate the law, according to Berlex attorneys. Biogen said the two drugs have different molecular structures and different clinical results, in particular, Avonex’s ability to slow the progression of the disease. Also, Avonex has fewer side effects than the flu- like symptoms some patients get from Betaseron, the company said. Jeffrey Latts, Berlex vice president, said he was not surprised at the decision, adding that once the FDA approves Avonex, Berlex will be back in court. Berlex is the U.S. subsidiary of Schering A.G., the German pharmaceutical firm. Betaseron is Schering’s biggest source of revenue. "My understanding is that since the FDA has not taken action on Avonex there is no reason for a restraining order, but the merits of our case will be heard," said Latts. Wall Street analysts appeared to side with Biogen, noting that Berlex seems threatened by competition. "It’s bad form to sue the FDA and bad form to try to prevent a rival’s drug from coming to market," said Sharon R. Seiler, biotechnology equity analyst at Oppenheimer & Co. Inc. in New York. "Even if the suit comes up again, most judges are not going to prevent patients from getting a drug that helps them." Seiler estimated that once the FDA approves Avonex, sales will ring in $96 million this year, and will climb to $480 million a year by the end of 1999. Betaseron sales are estimated in the $230 million range for 1995. Although an estimated 250,000 Americans have multiple sclerosis, about half have the most common form of the neurological disease, which affects the central nervous system and causes abnormal fatigue, impaired vision, loss of balance and muscle coordination, slurred speech, tremors, and bladder and bowel problems. Currently upward of 30,000 multiple sclerosis patients are taking Betaseron at an average cost of about $10,000 per year. But sales of the drug, which is made for Berlex by Chiron Corp. of Emeryville, Calif., have not grown, in part because patients are awaiting Avonex and several other drugs that are expected to gain FDA approval in the next several years. "I am glad to hear the FDA prevailed," said Stephen C. Reingold, vice president of research and medical programs at the National Multiple Sclerosis Society in New York. "We would like to see more drugs that are shown to be safe and effective for multiple sclerosis as rapidly as possible." —– Irwin Mortman Voice 513-891-7359 FAX    513-891-8186 E-Mail mort…@iac.net Cincinnati, OH

Response:

At 07:13 AM 5/3/96, you wrote:

X-POP3-Rcpt: szdoming@peseta Received: from guilder.ucdavis.edu by peseta.ucdavis.edu (8.7.5/UCD3.5.2)       id HAA04596; Fri, 3 May 1996 07:24:50 -0700 (PDT) Received: from TECHNION.TECHNION.AC.IL by guilder.ucdavis.edu (8.7.5/UCD3.5.1)       id HAA12440; Fri, 3 May 1996 07:24:40 -0700 (PDT) Received: from TECHNION.TECHNION.AC.IL by TECHNION.TECHNION.AC.IL   (IBM VM SMTP V2R2) with BSMTP id 3649; Fri, 03 May 96 17:24:53 IST Received: from TECHNION.TECHNION.AC.IL (NJE origin LISTSERV@TECHNION) by

TECHNION.TECHNION.AC.IL (LMail V1.1d/1.7f) with BSMTP id 7564; Fri, 3 May 1996 17:24:50 +0200

Received: from TECHNION.TECHNION.AC.IL by TECHNION.TECHNION.AC.IL (LISTSERV          release 1.8b) with NJE id 6044 for MSLIS…@TECHNION.TECHNION.AC.IL;          Fri, 3 May 1996 17:24:47 +0200 Received: from TECHNION (NJE origin SMTP@TECHNION) by TECHNION.TECHNION.AC.IL          (LMail V1.1d/1.7f) with BSMTP id 7558; Fri, 3 May 1996 17:24:47 +0200 Received: from mountk.conknet.com by TECHNION.TECHNION.AC.IL (IBM VM SMTP V2R2)          with TCP; Fri, 03 May 96 17:24:44 IST Received: from LOCALNAME ([206.32.3.84]) by mountk.conknet.com with SMTP; Fri,          3 May 1996 9:51:09 -0400 (EDT) X-Sender: s_guzie…@mail.conknet.com X-Mailer: Windows Eudora Light Version 1.5.2 Mime-Version: 1.0 Message-ID:  <MSLIST-L%96050317244…@TECHNION.TECHNION.AC.IL Date:         Fri, 3 May 1996 17:24:47 +0200 Reply-To: Multiple Sclerosis Discussion/Support

<MSLIS…@TECHNION.TECHNION.AC.IL

Sender: Multiple Sclerosis Discussion/Support

<MSLIS…@TECHNION.TECHNION.AC.IL

– Hide quoted text — Show quoted text ->From: s_guziejka <s_guzie…@mountk.conknet.com

>Subject:      low fat >To: Multiple recipients of list MSLIST-L <MSLIS…@TECHNION.TECHNION.AC.IL

>Content-Type: text/plain; charset="us-ascii" >Content-Length: 1090 >        for years i’ve been trying to eat a low fat diet. sometimes it gets >boring since i don’t have the endurance to do cook some of the things i used >to, and i was pretty good. my husband doesn’t cook, he’s a meat and french >fry man. >        i’m dying for pasta, now the only recipies i see are ones with >cream, or ones with tomato sauce, allergic to both. no dairy products at all >but can tolerate some cheese and no fat sour cream. tomatoes= heartburn. >what i’ve been doing is using spag. with a small teaspoon of margerine, some >sour cream, a little low fat cottage cheese and parmesan. >        any suggestions, that too is getting boring. also are there web >sites out there for cooking, can’t turn pages in a book, but as i said they >didn’t offer much when i did. >        thanks! > luv, susan            (`.-,’) >                     .-’     ; >                 _.-’   , `,-     meow >           _ _.-’     .’  /._ >         .’ `  _.-.  /  ,’._;) >        (       .  )-| ( >         )`,_ ,’_,’  _;) >  `-:;.-’ >                         The worst of all deceptions is self-deception. -Plato

Ever tried pesto ?  It’s a simple combination of basil (now’s the season), olive oil, parsley, a bit of salt, and as much garlic as you like.  Grind it together in a blender or food processor; add a touch of cream and plenty of parmesan cheese.  It’s great over any kind of pasta or potato dumplings (also low fat) known as gnocchi.  Also good as a pizza sauce. Carol Dominguez

Response:

In article <199605032118.OAA15…@franc.ucdavis.edu

, Carol Dominguez

<cbdoming…@UCDAVIS.EDU

wrote: …. Ever tried pesto ?  It’s a simple combination of basil (now’s the season), olive oil, parsley, a bit of salt, and as much garlic as you like.  Grind it together in a blender or food processor; add a touch of cream and plenty of parmesan cheese.  It’s great over any kind of pasta or potato dumplings (also low fat) known as gnocchi.  Also good as a pizza sauce. Carol Dominguez

Boy, I really like pesto. But with pine nuts too. Now is not the season for basil here. 2-4 months from now. Cathe             (Browman: email "brow…@haskins.yale.edu") [Note: Haskins, a non-profit speech research lab, is *not* part of  Yale. Those of us with computer accounts at Haskins often access  other places via Yale.]

Response:

                        The worst of all deceptions is self-deception. -Plato Ever tried pesto ?  It’s a simple combination of basil (now’s the season), olive oil, parsley, a bit of salt, and as much garlic as you like.  Grind it together in a blender or food processor; add a touch of cream and plenty of parmesan cheese.  It’s great over any kind of pasta or potato dumplings (also low fat) known as gnocchi.  Also good as a pizza sauce. Carol Dominguez

        is there a cream i can tolorate, i’m seeing my docter this week i’ll ask him if i should try those enzyemes, considering all the drugs i’m already on. is gnocchi easy to make? speaking of fatigue. could i make them early and fridge them? or can they be frozen? ]       thankis so much for answeing my post.  luv, susan            (`.-,’)                      .-’     ;                  _.-’   , `,-     meow            _ _.-’     .’  /._          .’ `  _.-.  /  ,’._;)         (       .  )-| (          )`,_ ,’_,’  _;)   `-:;.-’                          The worst of all deceptions is self-deception. -Plato

Response:

In article <MSLIST-L%96050402564…@TECHNION.TECHNION.AC.IL

, s_guziejka

<s_guzie…@MAIL.CONKNET.COM

wrote: …. Ever tried pesto ?  It’s a simple combination of basil (now’s the season), olive oil, parsley, a bit of salt, and as much garlic as you like.  Grind it together in a blender or food processor; add a touch of cream and plenty of parmesan cheese.  It’s great over any kind of pasta or potato dumplings (also low fat) known as gnocchi.  Also good as a pizza sauce. Carol Dominguez         is there a cream i can tolorate, i’m seeing my docter this week i’ll ask him if i should try those enzyemes, considering all the drugs i’m ….

I don’t *think* the cream is necessary (I don’t make the pesto I eat–either Louis or Bill do–which is why I’m not really sure. When Bill makes it, it’s using basil they grow. Yummy. There may be lots of different recipes for pesto.) Cathe             (Browman: email "brow…@haskins.yale.edu") [Note: Haskins, a non-profit speech research lab, is *not* part of  Yale. Those of us with computer accounts at Haskins often access  other places via Yale.]

Response:

Oprah’s personal chef (Rosalie ____) published a low-fat cook book that Kim uses.  There’s a recipe for pesto that uses little or no olive oil.  It uses lemon juice instead.  Personally, I like the olive oil type — with lots of garlic and pine nuts.  Also, pesto, at least the olive oil type, can be made when fresh basil is abundant and frozen for months.  Grow your own basil and buy pine nuts from bulk foods vendors.  Both are cheaper, and the basil will be fresher. That book also has a great pesto pizza, with semolina dough that’s to die for.  The dough can also be made in advance and frozen in ready-made disks for personal sized pizzas.  Good stuff.  Don’t expect it to taste like typical American pizza.  This is a different animal. (Actually, most of the variants are vegetable. Kim also makes a very light sauce for angel hair pasta that has fresh tomatos and lemon juice, as well as some other stuff I can’t remember.  Since it’s not a tomato sauce recipe, anyone who gets tomato-induced heartburn should be able to tolerate it.  It’s pretty good and easy to make. On the electronic front, there are quite a few Usenet groups devoted to food, and there are sometimes ASCII collections of their recipes available by FTP.  Try using the InfoSeek or AltaVista search engines at:   http://infoseek.com   http://altavista.digital.com and search Usenet groups by whatever types of food you’re looking for. — Craig Ross                              Find just about anything at: ross….@osu.edu                 http://www.albany.net/allinone/ r…@rclsgi.eng.ohio-state.edu           or        http://www.yahoo.com/

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ok

Response:

Hi

Response:

Hello Sylvia d Cripple! How are you doing? Lillian

Response:

Rick (re dated information): I deeply appreciate your discussion of geographic factors and, though I do not have your depth of information, I concur with your scepticism. However, it appears to me that you skirt (perhaps appropriately) epedemiological factors. The geographic distribution of MS is both a a geographic and an epedemiological issue. It would seem, for example, that MS does NOT occur randomly and that there may be demographic foci for the illness (e.g. the St. Larence valley, where I was raised (1945-1951) and some areas of rural Saskatchewan etc.) In anthropological theory, where I am most comfortable, this discussion is reminiscent of the nature-nurture debate of the turn of the century. For cultural and political reasons, nurture and biological determinism was expunged from anthropological theory until recently, when it has been revived by Jerome barkow and others. It would be a serious epistemelogical error to reject (which I do not think you are doing) environmental OR genetic correlates to MS. Both are seriously under-studied. In the words os one local MS activist that is not where the money is going, Now my disclaimer …   Gerry

Response:

RE Looking for access info Greetings – My mother has had chronic Prog MS for about 12 years. She is having a difficult time getting around and my goal is to make her visits to my house as comfortable and stress free as possible. She uses an electrc cart and chair for her weak days and a cane and walker on her better days. The biggest proplem seems to be inside the house. She is unsteady and often has what she calls "controlled falls". The falls all have a similar thud sound, and they appear as if it hurts. This is of course stressful for all of us. I’m looking for info, references,idea, ramp designs,books etc…about how I can work toward making my home more accessible, comfortable and safe for my mom. Please Email to snkew.orca.alaska.edu     Thanks!

Response:

Rick, have a real vacation and catch up on email when you return. Gerry

Response:

Hello.  My sister in law who was dx’d with MS almost two years ago requested that I ask the following:  Have any of you ever heard of or do you have any comments on the use of magnets to improve circulation and hence help fight the effects of MS? I would think that the magnets might cause some sort of response in the blood (due to the iron???), but can’t imagine this would have much affect on the nerves, which, in my limited understanding, is what MS effects.  She currently wears magnets in a Dr. Scholl style shoe pad.  And, she has been told that these magnets (there are other items being sold, e.g., mattress pads) are currently being used in Japan to help "combat" MS.  She is open to trying anything and discouraged by most MDs telling her that there is nothing she can really do, other than trying different drugs (with their bad side effects). Comments please!  P.S. she is anxious to get a computer and join in with this group.  :)  I’ve been keeping her informed of the goings-on since I subscribed this week. Thanks, Kendra

Response:

use of magnets to improve circulation

There are magnets everywhere in our daily life: there is that Earth’s magnetic field, there are coils in electric motors, speakers, in the power supply of your computer, the electron beam which paints your screen is being deflected by magnetic coils. There is *extremely* high magnetism in the MRI scanner, this is how the images are produced. Lots of studies have been performed, but there is no conclusive evidence tham magnetism does anything, pro or con, below a level at which it tears ferromagnetic material apart. Now this is not to say that magnetism does not do anything in the long run. However, I think that other influences (temperature, noise, mechanical stimulations, air quality, etc., etc.) are *much* stronger than any of the possible effects of magnetism. For instance, the simple activity of jogging causes jolts of 6 to 8 g (six to eight times your weight on the surface of the earth) on your heels- a *much* stronger effect than any magnet buried in your soles. Of course there is always "mind over body": believe in something strong enough, and it will happen.. Just make sure you take off your shoes when going through security at the airport Regards, Rudi Albrecht

Response:

More pearls (fewmets?) from Larry C. — On Sat, 30 Apr 1994 15:03:08 -600 Kendra Nelson said:

Hello.  My sister in law who was dx’d with MS almost two years ago requested that I ask the following:  Have any of you ever heard of or do you have any comments on the use of magnets to improve circulation and hence help fight the effects of MS?

Not, as far as I know, that has ever been *scientifically* proved.

I would think that the magnets might cause some sort of response in the blood (due to the iron???), but can’t imagine this would have much affect on the

The iron in your blood is not likely to be magnetically susceptible, unless you have been shooting iron filings into your bloodstream.

nerves, which, in my limited understanding, is what MS effects.  She currently

Your understanding is essentially correct.

wears magnets in a Dr. Scholl style shoe pad.  And, she has been told that these magnets (there are other items being sold, e.g., mattress pads) are currently being used in Japan to help "combat" MS.  She is open

People often ascribe great powers to things that they do not fully understand and cannot see. The Japanese, with their strong beliefs in things spiritual, are perhaps more susceptible to this than most of us.

to trying anything and discouraged by most MDs telling her that there is nothing she can really do, other than trying different drugs (with their bad side effects).

There are many things that she can do. In addition to diet and exercise to im- prove her general level of fitness, she can cultivate a healthy attitude towards her condition. MS is not the end of the world, as we all can tell her. Although desperation may lead her to try some new idea, and she may not have any MS symptoms for a while, this may or may not be the result of the ‘treatment’; MS is a highly variable condition. She should also not be particularly discouraged by her MDs insistance that there are drugs which may be of use to her. I am currently on two medications, Amantadine and BETASERON, which sound horrible if you read the side-effects listed in the PDR or package inserts, but which have resulted in a great improvement in my quality of life. Others have had similar or different results. The important thing is for you to continue in your support of her as she deals with the many issues that will come up. Good luck !!

Comments please!  P.S. she is anxious to get a computer and join in with this group.  :)  I’ve been keeping her informed of the goings-on since I subscribed this week. Thanks, Kendra

—                          : THE OPINIONS EXPRESSED ABOVE ARE THOSE OF Larry E. Cravetz            : WRITER AND NOT THOSE OF ROHM AND HAAS CO. Rohm and Haas Phila. Plant  : My opinions come from another dimension, (RSA…@ROHVM1.ROHMHAAS.COM : and hence are irrelevant to anyone else… NIHON E IKITAI YO!      KIPPU GA ARIMASUKA?      ITADAKIMASUKA??

Response:

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; Tue, 25

Mar 1997 13:04:53 -0500 Received: (from dopost@localhost) by grunt.dejanews.com (8.7.6/8.7.3) id MAA05482; Tue, 25 Mar 1997 12:02:48 -0600 Path: grunt.dejanews.com!not-for-mail Date: Tue, 25 Mar 1997 12:02:47 -0600 From: qnhv…@prodigy.com Subject: Re: IRWIN MORTMAN *** IMPORTANT Newsgroups: alt.support.mult-sclerosis Message-Id: <859309970.2908@dejanews.com

Organization: Deja News Usenet Posting Service To: 76702.2…@compuserve.com, qnhv…@prodigy.com, rl…@isd.net References: <michael_watkins/fs/ksg-1703971855570001@ksgb157.harvard.edu X-Article-Creation-Date: Tue Mar 25 17:12:50 1997 GMT X-Originating-IP-Addr: 198.83.18.58 (piweba1y-ext.prodigy.com) X-Http-User-Agent: PRODIGY-WB/3.1d X-Authenticated-Sender: qnhv…@prodigy.com [This is a courtesy copy of an article posted to Usenet via Deja News] In article <01bc38a4$99334f80$d1c801cf@rickleaf

,

  "Rick Leaf" <rl…@isd.net

wrote: It seems that Merle Spector,(76702.2…@CompuServe.com) coordinator of the MS forum on CompuServe has pressured Irwin Mortman (and pressured Chanoch to pressure Irwin) to stop posting the material he has been posting to MS-List. Just curious but has anyone else Emailed Merle in an effort to get an explanation for this. I did and got no response. I would encourage all those who miss Irwin Mortman’s posts to let Merle Spector know your feelings.   Email to : Merle Spector  76702.2…@CompuServe.com

Most bullys ignore attacks. ——————-==== Posted via Deja News ====———————–       http://www.dejanews.com/     Search, Read, Post to Usenet

Response:

SUBJECT: Re: IRWIN MORTMAN *** IMPORTANT – Hide quoted text — Show quoted text -Paul/Joyce Eberl <ebe…@ERINET.COM

wrote: g…@GHOLT.TOP.MONAD.NET wrote: So this is why I haven’t seen much from Irwin of late.  I have pretty

much

stayed away from this group because of a lot of nastiness,

vindictiveness and

David Metzger garbage and everyone’s instistence on feeding into him

by

responding… Please donot stay away from the group because of Metzger – that’s just

feeding

into him as well as responding to his adolescent antics. The best thing to do is

just

ignore him and carry on as if he isn’t there. He has zero credibility with this

group.

If he pulls the same stunts in his life off of the computer, he must be a

lonely

person. And that’s sad…and somewhat pathetic, but we all dig our own holes (also

known as Paul i have hundreds of online friends that i have met at parties – Hide quoted text — Show quoted text -

‘Instant Karma’ – God bless John Lennon for coming up with that one). —                                Paul Eberl                 "Try giving yourself credit for what you CAN do,                 rather than berating yourself for what you CANNOT"                                                 -JoAnn LeMaistre                                    =                                   | |                               __  | |                              (__@)   ______                              (__@)                              (__@)   _______                              (__@)__/

Response:

TO: g…@gholt.top.monad.net SUBJECT: Re: IRWIN MORTMAN *** IMPORTANT

So this is why I haven’t seen much from Irwin of late.  I have pretty

much

stayed away from this group because of a lot of nastiness,

vindictiveness and

David Metzger garbage and everyone’s instistence on

feeding into him by

responding…but I check in because a lot of my

friends depend on my to get

them the info that Irwin graciously posts

for the benefit of all.  this news

saddens me as he has done a great

service to us all.  Some of us do not have

access to ASK MS!!!  I hope,

that with your continued intervention with Berlex

in this matter, Irwin

will be back soon:)  Thanks for taking up the fight on

our behalf!!!! Karlyn

Karlyn if i did not drop my CI$ account i would post it on the group

It seems that Merle Spector,(76702.2…@CompuServe.com) coordinator

of the MS forum on CompuServe has pressured

Irwin Mortman (and

pressured Chanoch to pressure Irwin) to stop

posting the material he

has been posting to MS-List.

Ms Spector has taken it upon herself to

broadly

enforce copyright standards on MS-LIST even for material

that has nothing to do with CompuServe.  Her reasons for

doing this are

unclear.

She previously sent a message to Irwin, asking that he

stop

posting material from Ask MD’s about MS to MS-List.  It turned

out

the that this material was owned by Berlex and they were quite

annoyed (I talked to them about it) that

she had presumed to speak for

them.

Now she apparently has succeeded in driving Irwin off

MS-LIST altogether.

This is a very sad turn of events and enormously

presumptious

on the part of Ms. Spector. It is important that

material on MS-List not violate copyright

laws.  For that reason,I

wanted to let you know that I will be posting

regular summaries of

current research news to MS-List.

These will be summaries that I

will write and and not

directly quoted material and hence will not be

subject

to copyright concerns. The community has benefited a great

deal from Irwin’s efforts

to keep us informed and we should all be

grateful to him. To the

extent that we get access to good information

we all benefit.

Michael Watkins

– Hide quoted text — Show quoted text –

Response:

Sue complained about inability to sleep.  She might try Melatonin pills.  Melatonin is the sleep inducing chemical produced by your pinel gland and is the way your own body puts ypu to sleep.  It is available at health food stores and other such places. It doesn’t seem to work for me, but it does work for my daughter, who is the one with MS. Doug M.

Response:

Tom: I have had too many falls like that — keep my cellular phone handy. Could you have called anyone to help? I keep emergency numbers everywhere and handed keys out to neighbours. If you do not know the folks next door, have a ‘tea’ or a acquaintance ritual. People will help. What IS a hand cycle? And how is your indoor garden? Two questions:

Response:

Welcone back Margret!  Gerry

Response:

… Sleepless in New Franken… Sue Sue, I find that music helps me to unwind.  Might I suggest some mild music like Yanni or something from an opera.  Nothing like an opera to put me to sleep! — Brian

The "Ride of the Valkyries"?!?! Not *that’s* impressive! Jeff j…@dr.att.com

Response:

In article <01HGK8RCE8QW000…@GBMS01.UWGB.EDU

, KLI…@GBMS01.UWGB.EDU writes:

[...]

 My question to the group is:  do you have any advise for me in dealing with stress, the invisible kind, is a visit to a therapist warranted?  I meditate on occasion and that helps somewhat. Well, let’s see if I can eek out some sleep for the remainder of the night. Sleepless in New Franken… Sue kli…@gbms01.uwgb.edu –Boundary (ID weroJd3gGkRKxVaPnWSOdQ)–

Sue, I find that music helps me to unwind.  Might I suggest some mild music like Yanni or something from an opera.  Nothing like an opera to put me to sleep! — ___________________________________________________________________________ ___         Brian Gee               |             g…@inland.com          |    I don’t like aging, it is the option         Inland Steel Research   |            I don’t like!         (219)399-2729           |    I have MS, but MS does not have me!         ________________________________|__________________________________________ __

Response:

Just want to say hi and introduce myself.  I’ve been on the list for several days. I was diagnosed in 1989-if you can call it that.  One doctor said yes; another said wait.  That turned me off to doctors. (plus all the torture tests) Since then I’ve had 2 back surgeries.  It is like a nightmare-can I really have MS and back disease, too???  Yes.  Never really recovered from the last surgery.  The disc had cut into the membrane of my spinal cord.  Crazy glue worked wonders.  It was the only time I saw a neurosurgeon get nervous.  The doctors think I’m nuts (that’s possible) because I believe the MS muscle spasms pull my discs out of place.  I have muscle spasms in my back, legs, chest.  Have bouts of severe headaches, trigeminal neuralgia, eye problems, extreme fatigue, various numbnes, etc.  Until my last back surgery I was getting around well, but now I can’t walk very far without pain.  Who ever started that rumor about no pain with MS is CRAZY.  And I know about crazy. (takes one to know one). I’m married.  One child-13 year old daughter who is giving me fits.  I live in a small Indiana town north of Indianapolis. My hobbies are: learning to use a computer (I’m a computer idiot); bird watching; travelling; reading; cockatiels, smiling. I liked my old hobbies better-camping, hiking, tennis, gardening, raising dogs. Regards, Judi

Response:

Reply to message from jsi…@ACCS.NET of Wed, 22 May Hi Judy!

Just want to say hi and introduce myself.  I’ve been on the list for several days.

snip

I’m married.  One child-13 year old daughter who is giving me fits.  I live in a small Indiana town north of Indianapolis. My hobbies are: learning to use a computer (I’m a computer idiot); bird watching; travelling; reading; cockatiels, smiling. I liked my old hobbies better-camping, hiking, tennis, gardening, raising dogs. Regards, Judi

I got delete happy…I do that… When I was first tlod that I have MS, it was said even by the MS Society that there is no pain with MS!  Crazy, eh! I know that when kids become adolescents, they take off for another planet, with phone wires hanging from their ears…I was assured that they do, come back to earth.  I’m beginning to see that…One of my daughters has moved out and even took me out for Mother’s Day!  (Who’d-a thunk it?)  My home is no longer a battle zone!  Yes, it does get better!  For the longest time, I was convinced that kids should be sent to the desert with the counselors who had all the answers about child rearing and returned at the age of 19, ready to move into their own apartments…now..I think I’ll keep them!  it was worth it! Again, welcome! Love ‘n hugs, Jill — A smile is a light on your face that      lets people know your heart is home.                            - Author unknown –

Response:

At 10:53 AM 5/22/96 -0500, you wrote:

Just want to say hi and introduce myself.  I’ve been on the list for several days.

snip

getting around well, but now I can’t walk very far without pain.  Who ever started that rumor about no pain with MS is CRAZY.  And I know about crazy. (takes one to know one). I’m married.  One child-13 year old daughter who is giving me fits.  I live

snip

Regards, Judi

Judi,    Welcome. You seem to be doing very well with the computer. You found us didn’t you . Your daughter sounds like my son. He’s 13 too but I also have two 12 years olds to boot. Yep they can drive you crazy. So maybe it’s your daughter and not the MS that’s to blame . Or another possibility is the doctors. They are enough to drive anyone crazy.    I am glad you found us. I look forward to seeing more post from you and wish you well. Take care.                                         CL Spuhler                            _________________________                           |  ~    ^ ^               | Cheryl and Dana Spuhler   |  ~   ()()      /(       | spuh…@bright.net        |  ~  / /  |    /  (      | Beware of Dragons         |   ~00/ | |___/    (     |                           |    ^^  |           (    |                           |____________________(___|

Response:

Reply to message from spuh…@BRIGHT.NET of Wed, 22 May – Hide quoted text — Show quoted text -

At 10:53 AM 5/22/96 -0500, you wrote: Just want to say hi and introduce myself.  I’ve been on the list for several days. snip getting around well, but now I can’t walk very far without pain.  Who ever started that rumor about no pain with MS is CRAZY.  And I know about crazy. (takes one to know one). I’m married.  One child-13 year old daughter who is giving me fits.  I live snip Regards, Judi Judi,   Welcome. You seem to be doing very well with the computer. You found us didn’t you . Your daughter sounds like my son. He’s 13 too but I also have two 12 years olds to boot. Yep they can drive you crazy. So maybe it’s your daughter and not the MS that’s to blame . Or another possibility is the doctors. They are enough to drive anyone crazy.   I am glad you found us. I look forward to seeing more post from you and wish you well. Take care.                                        CL Spuhler                           _________________________                          |  ~    ^ ^               | Cheryl and Dana Spuhler   |  ~   ()()      /(       | spuh…@bright.net        |  ~  / /  |    /  (      | Beware of Dragons         |   ~00/ | |___/    (     |                          |    ^^  |           (    |                          |____________________(___|

Hi Cheryl! Do you have twins?  I have twin daughters…they’re no long 13, but they were once!  And their brother is 12 months younger than they are!  My daughters are now 18 and their brother is 17.  It does get better!  8`) Love ‘n hugs, Jill — A smile is a light on your face that      lets people know your heart is home.                            - Author unknown –

Response:

Judith Simon (jsi…@ACCS.NET) wrote:

: Just want to say hi and introduce myself.  I’ve been on the list for several : days.

snip (actually cleared nicely!

Judi: Welcome to our group. I am always amazed at how many people are initially dx as "crazy". To welcome and cheer you … upon my dx … a dear friend stated … You don’t have MS …. You have MSL … to which I replied "pray, please explain what MSL is?" She laughed and said Mutilple Screws Loose! We all laughed and said knew that along time ago about me … didn’t need an MRI to tell us that! Anyways MSL is alot more fun that plain, old boring MS!  <VBG

Welcome, and enjoy! Kind regards Kim Mayson — khmay…@freenet.edmonton.ab.ca

Response:

Exacerbation is the word used                        when the disease takes you…. When the disease takes you it seems at times you drift away to a place I cannot follow in to a world I do not know. Each time you are taken you drift a little further down a dark and distant shore Where the waves grow ever louder drowning my faint voice calling out to you. If only I can hold your hand you can walk back with me but I cannot find my way to you. While you are gone I am with you here. If you become lost a part of me will be lost with you…….                  When the Disease takes you.

Response:

Beautiful, Beautiful,,,,,Thank you Don. These are some of the words and feelings my husband uses when the disease ‘takes’ me. Sigh……………….. (((((((((((((((((((((hugs))))))))))))))))))))))) – Hide quoted text — Show quoted text -

Exacerbation is the word used                       when the disease takes you…. When the disease takes you it seems at times you drift away to a place I cannot follow in to a world I do not know. Each time you are taken you drift a little further down a dark and distant shore Where the waves grow ever louder drowning my faint voice calling out to you. If only I can hold your hand you can walk back with me but I cannot find my way to you. While you are gone I am with you here. If you become lost a part of me will be lost with you…….                 When the Disease takes you.

             B.J.        M.S.- THE DISEASE OF USED TO BE.             *HUGS*   For those looking for first-hand accounts of experiences with MS, try:           http://www.pobox.com/~mattl/ms         and don’t forget to leave your experiences too!     Take charge of your health-care, you are the boss and         you are the one the meds./treatments affect. "Fool some one once and they’ll be foolish for a day, but teach them to fool themselves and they’ll be foolish for a lifetime." R.J. (a.k.a Michael Fry)

Response:

Hi everybody, I have just subscribed to this LIST! Does anybody know about present state of research on:  HHV-6 and Multiple Sclerosis and on Mercury intoxication and Multiple Sclerosis ? Thanks in advance, Ric _______________________________________________________ Riccardo Tommasini University of Berne – Institute of Applied Physics – Laser Dept. Sidlerstrasse 5  -  CH-3012 Bern FAX: +41 31 6313765 tommas…@iap.unibe.ch  http://ubeclu.unibe.ch/iap/ _______________________________________________________

Response:

Ric, One paper that I’m sure you’d find interesting is:         Siblerud, R.L. and Kienholz, E. (1994) Evidence that mercury from silver dental fillins may be an etiological factor in multiple sclerosis. Science of the Total Environment 142:192-205. Peter At 10:18 AM 9/9/97 -0700, you wrote: – Hide quoted text — Show quoted text -

Hi everybody, I have just subscribed to this LIST! Does anybody know about present state of research on: HHV-6 and Multiple Sclerosis and on Mercury intoxication and Multiple Sclerosis ? Thanks in advance, Ric _______________________________________________________ Riccardo Tommasini University of Berne – Institute of Applied Physics – Laser Dept. Sidlerstrasse 5  -  CH-3012 Bern FAX: +41 31 6313765 tommas…@iap.unibe.ch  http://ubeclu.unibe.ch/iap/ _______________________________________________________

—————————————————————– "Skepticism is the chastity of the intellect"     Santayana

Response:

Daphne: I average once a night and sometime twice, though there seem to be some consistent patterns: # I probably van make it through the morning if I forgo   breakfast coffee. # During the day, I drink water or juice. # Frequenvy is enhanced in the afernoon (2-3x) snd in the   early evening. # Before I leave anywhere, I make an obligstory trip.

Response:

Ruti: I enjoyed your post, particularly as I am eager to explore COP-1 treatment. – Do you find that COP-1 has demosntrably assisted you? PS – I will be in Israel from April 30 through May 8 and (Chanoch take note)   Initially, tied up with a meeting that (May 1-3) in Jerusalem.   I will send you and Chanoch our itinerary as it takes shape.

Response:

Evan: Speaking from experience but without the requisite medical ‘wisdom,’ it sounds to me like Cynthia might try to keep as ‘limber’ as possible (exercise, swimming, walking) without exhausting herself. I did this, for several years, with an exercise bike and now that I cannot rotate my right foor, I can still use our ‘rowing machine.’ I have also tried to build up upper body strength. There is a rich and exciting life in the slow lane (to quote a colleague with Parkinson’s). Keep busy, Cynthia, but find ways to avoid taxing yourself unecessarily (by using stools, avoiding pointless trips around the house and generally *conserving* (but using) energy. This is what we did and still try to observe, but nobody is perfect! Good kuck and let us know more about your experiences. Gerry

Response:

Rick, I was moved by your upbeat remarks on the scale of symptoms and attitude. Did you find that MS gave you any insights into counselling on the suicide prevention line? I have been asked to speak to a group of people who staff a suicide prevention line about some of the sentiments of a disabled caller. They could start by lurking on MS-L. Thanks!

Response:

Anne Mac Donald writes of ‘blackouts and ms.’ Long before I was diagnosed, in 1986, I experienced the occasional 2-3 minute blackout spell — often in one eye but sometimes in both. Anne, the blackouts did not recurr after my md attack, nor did the dizzy spells that I had experienced from 1958 or so to 1968 and attributed to an inner ear problem caused by a childhood school-bus accident (At least my internist made that attribution). There’s more. After 1986, I had several Humphery visial field tests ordered by opthamologists who suspected O. Neuritis. I *need some* good news. The tests were negative and I am licenced to drive hand controls. But that is another tale.  Gerry

Response:

Sandra  ("friends…"): * I found that I maintained all my longtime friends and made   a few new ones. But there was a ‘falling away’ and my   frienship circles, as sociologists refer to them, retrenched   and regrouped. But there were a few surprises (being 48, I   not the only griend encountering a change of life!) * Friends who have family members who are chronically-ill   (cancer, environmental allergy, and ms) aeemed to identify   with US (not just me) more readily. I am convinced that there   is a community of interest among all chronically-ill persons   and their families. Some of my strongest supporters have   used their experiences to empathize and assist my own. * A small number of work-mates deny my illness, probably   because of fear or, in some cases, because they feel that   their own experiences mae them invincible. I can live with their   skepticism and so must everyone else.   Often, their sentiment is that if I cannot (do whatever)   it’s because I will not try.   If you do not have acquaintances or relatives like that —   wonderful!   Most people ARE empathetic, even to the extent of denying what   you can do. But since I keep finding new ways to do old things   and people DO change dramatically, our spport networks do   remain our lifeline. Sometimes that means treading (hmm .. rolling)   softly. I may live an illness metaphor but I try bot to foist it on others.

Response:

Margret: Your post on whilistic response, in Europe is engrossing and thought provoking. In Canada, where we have national health, some related services are covered or partially- covered and, *as in the US* and in any large health care system, their are abuses. I am convinced that there are effective means to check abuse but, if they are the essence of a health system, then it surely will not work. I do not seek unecessary care, perhaps because I know that it will alwayts be there. Another issue is that medicalization is in strident opposition to alternate care. But it is also up to the consumera to define that care. Rehab medicine is now defined as medicine, but there is no unanimity about the legitimacy of the rehab paradigm  (see Albrecht and others).

Response:

 on Beta 2 years now, and am very pleased. Avonex is not approved by FDA yet so was not offered. A friend of mine just started daily injections of COP1 and is doing fine. I think it depends on the individuals to which drug to choose and how it reacts to your body. Good Luck, Linda A.

Response:

I have experienced heart palpitations while taking Indural [recommended to me for shakiness, but didn't work for me].  They stopped when I stopped takling the drug.  Now I am hesitant to start the next drug recommended for the shakes. ciao, susan

Response:

From: "Michael Watkins"  <MICHA…@ksg1.harvard.edu

To: "Autoimmune Research" <Autoimmune_Resea…@ksg1.harvard.edu

Subject: #Reponse #4 to Embry Paper — Victor Levadi Date: Wed, 21 Feb 1996 11:26:32 EST Reply-to: Autoimmune_Resea…@ksg1.harvard.edu Sender: Mai…@ksg1.harvard.edu I had to make one editorial change, I was designated as Dr. Mortman, I am not a doctor. Date: Wed, 21 Feb 1996 00:43:03 -0500 From: lev…@liman.Rutgers.EDU (Victor Levadi) To: MSLIS…@TECHNION.TECHNION.AC.IL Cc: mort…@iac.net Subject: Re: Repost of Analysis of MS Cause — very long I found Mr.. Mortman’s posting of  Dr. Embry’s paper to be most interesting. Embry has presented a good case for  considering diet to be a significant causal factor in MS.  The first part  of his paper establishes the logical basis for his reasoning.  He then  proceeds to cite certain statistics to support the hypothesis that diet fits  the structure that he presented. In attempting to evaluate this paper,  I see two key parts.  First. is his logical structure valid- or perhaps,  how good is the logical structure? Second,how good is the data that he  cites in attempting to support his thesis about diet fitting the structure? In the final part of the paper,  Embry presents  some dietary suggestions and then lists some references that,  presumably support such assertions. I think that this third part of the paper  does little to support his thesis. The key issue to be discussed is whether  diet is a causal factor in MS.  His proposal of a "good" diet does little  nothing to advance his point. If, however, further examination of  the first two questions does support Embry’s thesis, then he has made  a substantial contribution. I hope that other contributors  will be able to look more deeply into Embry’s logical structure and the  data and statistics that he uses to support his argument. Stuart Neilson’s response as posted  by Mr.. Mortman does specifically address these fundamental questions, both the  logical structure and the supporting data.    I have not yet had time to  digest fully Neilson’s response, but it certainly appears  to be the kind of constructive response that the original article deserves.  I  hope that we will see more thoughtful comment on this important subject. Victor Levadi, lev…@winlab.rutgers.edu 201-992-7069 Irwin Mortman Voice 513-891-7359 FAX    513-891-8186 E-Mail mort…@iac.net Cincinnati, OH

Response:

Hello!       I hope, you forgive my English!, in the MSlist I am new. Since about 5 years my greatist problem is the spasticity (14years MS). It begun with slightly contracting in my legs and now, when I want to stand up after sitting, I need a fiew minutes, till I am able to put up my body. My ‘friend’ wheelchair I have allways by me now. I have tried many verious drugs (as Lioresal, Dantamakreen, Lebic and so on), but with the same result, the spasticity is stable and the strength in the legs was gone. The best reason I got with swimming and gymnastic. I would be happy to hear enybody with similar difficulties, perhaps going another ways? Thank You              Svatja

Response:

Response:

I (bb…@rapidnet.com) wrote:

: Do you incorporate any yoga or at least general : stretches into your routine? [snip] By the way, I should have mentioned to you that if you do decide to try yoga, it may be best to seek professional help with it or at least take it very slowly at first.  If you have any numbness (to where you wouldn’t be able to feel if you are stretching too much) or have severe stiffness and stretch too much too quickly, it could cause injury.  You may already know this, but some may not.  Also, anyone who stretches muscles should never "bounce" back and forth in and out of the stretch (as you might see with runners or movie heros on t.v.) or "push it."  Stretching does not entail the same principles as the "No pain, no gain" theory.  Ease into each pose and do not push it into discomfort.  With practice, the various poses become easier and blossom into a fuller stretch each time. Sorry for having to post again, but I didn’t think about the cautionary factors until I’d already pushed the button to send my first message. Jennifer  *** Again, note that any comments made herein are written solely by ***      Jennifer and should not necessarily reflect upon nor be held      accountable to Brett Bump or any of his family/friends.  He is      just kind enough to let me use his internet account.

Response:

Svatoslav Matula (mat…@V7C10.BS.PTB.DE) wrote:

: Hello! :       I hope, you forgive my English!, in the MSlist : I am new. Since about 5 years my greatist problem is : the spasticity (14years MS). It begun with slightly : contracting in my legs and now, when I want to stand : up after sitting, I need a fiew minutes, till I am : able to put up my body. My ‘friend’ wheelchair I have : allways by me now. I have tried many verious drugs : (as Lioresal, Dantamakreen, Lebic and so on), but with the : same result, the spasticity is stable and the strength : in the legs was gone. The best reason I got with : swimming and gymnastic. I would be happy : to hear enybody with similar difficulties, perhaps going : another ways? : Thank You :              Svatja Hi Svatja: From what I see, your topic comes across very well, so don’t worry about your English.  I’ve grown up with English, and there are points about it I still don’t quite comprehend! I’m not officially diagnosed as having MS yet, but I do have many of the symptoms that point to it.  Tightened muscles is one of them.  I think that’s the same as "spasticity."  Anyway, I imagine the swimming and gymnastics help.  Do you incorporate any yoga or at least general stretches into your routine? I have practiced yoga positions for about 15 years now.  Whenever I feel any stiffness coming on (mostly in my legs), I do slow, calm, breathed-into yoga stretches.  I find that yoga not only provides good muscle tone and limberness, it is also a good exercise that does not often cause the exhaustion one might experience in more strenuous exercises.  There are a lot of good books and videos available that can get a person started in basic yoga moves.  I’m not quite advanced enough in it to do hand-stands or follow along with the Jane Fonda yoga work-out (too dynamically active for me), but I’ve developed a routine that suits my needs perfectly.  That is another good thing about yoga:  you can stylize your daily (or every other day or whatever you find best) routine to cater to your particular needs. I do mildly challenging balance exercises, a lot of back and leg stretches, and some relaxation poses.  It works for whatever I’ve got.  I imagine it would work well for those with multiple-sclerosis.  I’ve read various books that state that it does, so it might be worth a shot. Take care and hope your life is on an upsweep to the top. Jennifer ***Please note that any comments made herein are written solely by ***    Jennifer and should not necessarily reflect upon nor be held    accountable to Brett Bump or any of his family/friends.  He is    just kind enough to let me use his internet account.

Response:

Eckles, Glenn, TSgt, SAM-OPCMC (ECKL…@COMM.HQ.AF.MIL) wrote: : HUMOR BREAK!!!! : ______ these are wonderfull # 8 was said by former general and prez Dwight David Eisenhour REALy : 1.  Indecision is the key to flexibility. : 2.  You can’t tell which way the train went by looking at the tracks. : 3.  There is absolutely no substitute for genuine lack of preparation. : 4.  Nostalgia isn’t what it used to be. : 5.  Sometimes too much to drink isn’t enough. : 6.  The facts, although they may be interesting, are irrelvant. : 7.  Someone who thinks logically provides a nice contrast to the real world. : 8.  Things are more like they are today than they ever were before. : 9.  Everything should be made as simple as possible, but no simpler. : 10.  Friends may come and go, but enemies accumulate. : 11.  I have seen the truth and it makes no sense. : 12.  This is probably as bad as it gets, but don’t count on it. : 13.  If you think there is good in everyone, then you have not met everyone. : 14.  All other things being equal, fat people use more soap. : 15.  If you can smile when things go wrong, you have someone else in mind to : blame. : 16.  One-seventh of your life is spent on Mondays. : 17.  By the time you make ends meet, the ends move. : 18.  Not one shred of evidence supports the notion that life is serious. : 19.  The more you run over a dead cat, the flatter it gets. : 20.  There’s more than one way to skin a cat, but you always wind up with a : cat skin. : Unknown Author

Response:

From: "Michael Watkins"  <MICHA…@ksg1.harvard.edu

To: "Autoimmune Research" <Autoimmune_Resea…@ksg1.harvard.edu

Subject: #Breakthrough on MS, other autoimmune conditions? Date: Fri, 26 Jan 1996 17:34:34 EST Reply-to: Autoimmune_Resea…@ksg1.harvard.edu Sender: Mai…@ksg1.harvard.edu Some exciting new research was reported yesterday in the journal Nature This message contains the summary of the article from Nature, and two press releases Treatment of experimental encephalomyelitis with a peptide analogue of myelin basic protein Nature 379, 343-346 (1995) Summary from Nature Experimental encephalomyelitis  is an autoimmune disease in mice  which serves as a model for multiple  sclerosis in humans. Brocke and  co-workers show that peptide  analogues of myelin basic protein  can be used to reverse the symptoms  of the disease. The therapeutic effect  of the peptides is inhibited by  antibodies to IL-4, suggesting that  it may be mediated by the induction  of Th2-type T cells. Such cells could  inhibit the Th1 responses commonly  associated with inflammation. S Brocke,  K Gijbels, M Allegretta, I Ferber, C  Piercy, T Blankenstein, R Martin, U Utz,  N Karin, Ling, P J Fairchild, D C Wraith,  A O’Garra, C G Fathman & L Steinman     STANFORD, Calif.–(BUSINESS WIRE)– Jan. 24, 1996–A new study points researchers toward a promising treatment  for people with multiple sclerosis (MS).     The study suggests that a single  agent may halt the immune  system’s attack on nerve cells that leads to  MS, and that clinicians  can clear patients’ brains of destructive T  cells by treating the  patients  with a single peptide.  Until now,  researchers had suspected that a  complex mixture of many compounds  might be necessary to halt  the symptoms  of the disease, which affects about one  in 1000 people  in the United States.     The finding will be published in the  Thursday, Jan. 25 issue of Nature, in an  article by a team including researcher Dr.  Stefan  Brocke, professor of medicine Dr.  Gary Fathman, professor of  neurology Dr. Lawrence Steinman, and postdoctoral fellow   Dr. Koenraad Gijbels, all at Stanford;  and researcher Dr. Anne O’Garra  at DNAX  Research Institute in Palo Alto.     The finding is based on studies of  mice with a disease  researchers believe  models multiple sclerosis.  In multiple   sclerosis, cells in the body’s immune system  attack and destroy the  protective sheath  that covers nerve fibers in the brain and  spinal  cord.  This causes symptoms ranging  from numbness and tingling to  paralysis and incontinence.     Researchers can induce the multiple  sclerosis-like disease in  mice by injecting  them with myelin basic protein, a main  component of the protective sheath.   T cells in the mouse’s immune system attack   the foreign myelin basic protein as well as  the protein in the myelin that coats the  mouse’s own nerves, thus causing the disease  known as experimental autoimmune  encephalomyelitis (EAE).  In the model,  the  T cells’ initial attack is triggered  by a small segment of the myelin  basic protein, called a peptide, said Brocke,  the article’s lead  author.     Researchers have found that once the  disease is established,  other peptides in  myelin basic protein begin triggering attacks  by  groups of T cells, each group tailored to  attack a different peptide, said Brocke, a researcher in Stanford’s neurology department.   Until  now, researchers suspected that a  cure would have to be a complex  mixture of  elements designed to fend off each of the  different groups of T cells swarming the nerve tissue, Brocke said.     In the study, the researchers found  that they could reverse the influx of  T cells by exposing the cells to just  one particular  peptide. This peptide  triggered the withdrawal of all groups of   invasive T cells from the brain.     "What we did was this: We induced a  multiple sclerosis-like  disease in mice  and then treated the established disease  by injecting them with a solution containing  a small portion of the protein that  causes  the disease.  We found that the mice got  better — their  paralysis subsided," said Brocke, who performed experiments  in  hundreds of mice.     "Since we can reduce this variety  of T cells without using  multiple therapeutics, it looks like we have  a nice suppressive agent in our hands," Brocke said.     Several drug companies, including  Neurocrine Biosciences Inc.,  are attempting to use the peptide to develop  a multiple sclerosis  treatment and are  carrying out clinical trials, Brocke said.    Steinman is Neurocrine’s chief scientist  of neuroimmunology.     The same general strategy might be  successful in treating other autoimmune  diseases, such as arthritis and diabetes,  Brocke said.     The Stanford and DNAX researchers  collaborated with others at the National  Institute of Neurological Disorders and  Stroke; the Max-Delbrueck Centrum for  Molecular Medicine in Berlin; the Weizmann Institute of Science in Rehovot, Israel;  Neurocrine Biosciences Inc. in La Jolla  and Cambridge University in Cambridge, England.     The research was funded in part by  the National Institute of Neurological  Disorders and Stroke, the Phil N. Allen  Trust and the Wellcome Trust. CONTACT: Stanford Medical Center News Bureau Rosanne Spector, 415/725-5374 or 415/723-6911 KEYWORD: CALIFORNIA INDUSTRY KEYWORD: MEDICINE BIOTECHNOLOGY EDUCATION     SAN DIEGO, Jan. 24 /PRNewswire/ —  Neurocrine Biosciences, Inc. today announced that an investigational  multiple sclerosis (MS) treatment reverses paralysis in animal models  as reported in tomorrow’s issue of Nature (vol. 379, no. 6563, pages 343-345).   Scientists at Neurocrine, Stanford  University and The National Institutes of  Health (NIH), in an article titled,  "Treatment of Experimental Encephalomyelitis  With a Peptide Analogue of Myelin Basic  Protein," have designed a peptide that binds specifically to the disease-causing  T cells in the plaques of MS patients’  brains, turning them off and reversing  the inflammatory cascade, thereby reversing paralysis.     "This is a significant development  in MS research.  It is the first time a  complex autoimmune process has been  completely shut down with a specific  immunomodulator peptide which targets  only a small percentage of the disease- specific cells," according to the article’s  lead author, Lawrence Steinman, M.D.,  Chief Scientist of Neuroimmunology of Neurocrine, Professor of Neurological  Sciences at Stanford University, and Professor of Immunology at The Weizmann Institute.     MS is an inflammatory disease of the  central nervous system that destroys the  protective myelin sheath insulating nerve  cells.  This occurs when T cells, immune  cells that normally patrol the body for pathogens and tumors, inappropriately  attack the myelin sheath.  This disease  affects between 250,000 and 350,000 people  in the United States and over 1.1 million  worldwide.  The usual age of diagnosis is  between 20 and 40 years old, and like many  autoimmune diseases, strikes twice as many women as men.     "MS is a devastating chronic  neurodegenerative disease with no cure. Because current MS therapies show only  limited efficacy in slowing disease progression, there is a need for innovative  new treatments," said Steve Hauser, M.D.,  a leading multiple sclerosis clinician at  the University of California, San Francisco  Medical School (UCSF).     Dr. Steinman and several academic labs  around the world have identified the region  housing the dominant protein within the  myelin sheath that is targeted by the  autoimmune T cells, called myelin basic protein (MBP).  Neurocrine has developed  an altered peptide from a region of MBP  that has the ability to deactivate the  T cells attacking the myelin sheath.     "Ideally, one would be able to  silence or remove only the part of  the immune system that is self-destructive  and leave the rest of the immune system  intact to fight infection," said Dr. Steinman.   "By focusing on T cells that cause the  autoimmune disease, we appear to be able  to come much closer to accomplishing this  than researchers previously thought possible."     "Neurocrine believes that this  approach can be used in many intractable  autoimmune diseases including diabetes,  rheumatoid arthritis and uveitis," said  Gary Lyons, President and CEO of Neurocrine.   "Given the substantial progress Neurocrine  has made in the past year, we anticipate  initiating clinical trials for the treatment of MS in 1996."     Neurocrine’s MS research has been  carried out under an established Cooperative  Research and Development Agreement (CRADA)  with the laboratories of Dr. Roland Martin  and Dr. Henry McFarland at NIH and is sponsored in part by a grant from the  Small Business Research program.     Neurocrine Biosciences, Inc.,  headquartered in San Diego, is a neuroimmunology biopharmaceutical  company integrating medicinal chemistry and molecular biology to develop and  commercialize small molecule therapeutics  to treat diseases of the central nervous  and immune systems including multiple  sclerosis, Alzheimer’s disease, stroke  and psychiatric disorders. CO:  Neurocrine Biosciences, Inc. ST:  California IN:  MTC SU: Irwin Mortman Voice 513-891-7359 FAX    513-891-8186 E-Mail mort…@iac.net Cincinnati, OH

Response:

please remove me from the list. I didn’t realize that I would get so much email. I can’t keep track. Thanks. Sara Rozin *************************************************************** Sara Rozin Kazakstan Project Coordinator The Methodist Hospital Ph. (713)798-6135 Fax (713)798-3990 E-Mail: SRo…@bcm.tmc.edu **************************************************************

Response:

Hi Sara, If you are really wanting to be removed from the list, send a message to Technion as below.

**************************************

To: LISTS…@TECHNION.TECHNION.AC.IL Subject: Text: SIGNOFF MSLIST-L Sorry to see you leave, but hope this will help. ((((((((((((((((hugs))))))))))))))))))))))))))))))))))              B.J.        M.S.- THE DISEASE OF USED TO BE.                *HUGS*   For those looking for first-hand accounts of experiences with MS, try:        http://stripe.colorado.edu/~leonarm/ms         and don’t forget to leave your experiences too!     Take charge of your health-care, you are the boss and         you are the one the meds./treatments affect.

Response:

The Multiple Sclerosis Menu website I referred to in my previous message is: http://dem0nmac.mgh.harvard.edu/neurowebforum/MultipleSclerosisMenu

Response:

Sara Rozin (sro…@BCM.TMC.EDU) wrote:

: please remove me from the list. I didn’t realize that I would get so : much email. I can’t keep track. Thanks. Sara Rozin Sara and everyone else who wants off;  YOU have to do it yourself. Just posting like that will NOT get it.  You got instructions when you signed on about how to get off.  Use it. There are other recent posts telling how to do it; read them. Sorry if I sound grouchy;  I am. —    ,o888b,`?~~~~~                                           ~~~~~P’,d888o,  ,8888 888   ?~~~     John D. O’Brien  obri…@sound.net    ~~~P   888 8888,  8888888P’    ~~~                                           ~~~     ?8888888  888P’        ~~~     "When all the World recognizes        ~~~        `?888  `88   O     d~~~       good as good, This in itself        ~~~b     O   88′    `?._  _.o~~~~~       is Evil." Lao Tsu                   ~~~~~o._  _.P’

Response:

MSLIST-signoff

Response:

Hi Lee and Kathy, I will miss you, but if you are serious about signing off the following is how you do it. ((((((((((((((hugs)))))))))))))))))))))))))))))))))) send a message to Technion as below.

**************************************

To: LISTS…@TECHNION.TECHNION.AC.IL Subject: Text: SIGNOFF MSLIST-L              B.J.        M.S.- THE DISEASE OF USED TO BE.                *HUGS*   For those looking for first-hand accounts of experiences with MS, try:        http://stripe.colorado.edu/~leonarm/ms         and don’t forget to leave your experiences too!     Take charge of your health-care, you are the boss and         you are the one the meds./treatments affect.

Response:

Hi, Just new at this, certainly Have gleaned valuable info form you folks… I am 46 years old, diagnoised beign MS, also haveother medical problems..but no matter.Have been ‘disabled’ for 8 years, was your typical ‘type apersonality’ now a B- in wheelchair… I am looking for info…looking for diet or appropriate food..any ideas. My roomate is hyperthyroid and graves..so we are looking at for diet for autoimmoine disorders ..any ideas or websites which might be helpful Thanks Jane Danielosn cod…@ra.isisnet.com

Response:

On Tue, 9 Apr 1996, Jane Danielson wrote:

Hi, Just new at this, certainly Have gleaned valuable info form you folks… I am 46 years old, diagnoised beign MS, also haveother medical problems..but no matter.Have been ‘disabled’ for 8 years, was your typical ‘type apersonality’ now a B- in wheelchair… I am looking for info…looking for diet or appropriate food..any ideas. My roomate is hyperthyroid and graves..so we are looking at for diet for autoimmoine disorders ..any ideas or websites which might be helpful Thanks Jane Danielosn cod…@ra.isisnet.com

There is lots of information about MS at the following site: http://WWW.medlib.arizona.edu/~sumption/ Nancy Pope                                                            ^..^ Without music life would be a mistake                (oo) =========================================================== MS Info: http://www.medlib.arizona.edu/~sumption/ ============================================================

Response:

You might try taking N Acetyl Cystine, commonly known as NAC in good health food stores.  NAC is an amino acid which has been found to be beneficial with AIDS patients and, in some studies, with people with MS and other neurodegenerative disorders.  A study was done by researchers in the Department of Neurology and Brain Institute at the Univ. of Florida which also confirmed some potential benefits from using NAC.  A copy of this study can be found on the Multiple Sclerosis Menu at the Mass. General website on the internet. On a personal level, my daughter has MS and frequently gets a tiredness/numbness in her hands in the evening.  She began taking NAC a few weeks ago and almost immediately reported a 100% improvement, to use her description.  There is almost no downside to using NAC (the Florida study reported some minor effect on magnesium levels in the blood which can be dealt with by taking a supplement). I hope this helps….

Response:

Jane: I keep having occasional spills, getting onto bed. Also. I hate asking Barb or the kids to hoist my feet onto the bed in the evening when I am tired. If you have a hoist or a transfer board, which I occasionally use (or my Sturdi-Pole at home and my scooter, in hotel rooms) it gives you a lot of independence and suggests that someone cares.  We are ONLY disabled when we lose our independence!  // Gerry

Response:

could someone please tell me How to unsubscribe to this group.  Thank You pdi…@telerama.lm.com

Response:

REMOVE ME FROM THE LIST PLEASE! pdi…@telerama.lm.com

Response:

At 15:58 11/7/97 -0800, you wrote:

this is a test

Wassa matta?  You gots a problem??? P. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This message has been brought to you by:             /          /            /    ^~~^  /             /     ( ” )              /     {      }             /        "  "                      YE OLDE BAT PamY – Spokesmom for Jennie who has MS. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Response:

At 15:06 11/14/97 -0600, you wrote:

FWIW I had a spinal cord stimulator installed about a year ago and it is

wonderful, I can sit in my recliner most ofthe day and play on my laptop,while being stimulated and 95% of my pain is gone.

Ward

Wonderful news Ward!  Haven’t ’seen’ you in a dog’s age!  Glad the procedure is working for you. Hugs n prayers, P. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~         ~~~~~~~       /             __|

 /   )  

   |     |  ~ /       MISSY    |     | ~~ /        /___   ~~~              | Lord, please help me be the kind   of person my dog thinks I am.              PamY Spokesmom for Jennie who has MS. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Response:

"set no-mail"

Response:

From Stephen Wilson wils…@sornord.stuttgart.netsurf.de Stuttgart, Germany Here’s another macro virus alert, as copied from PointCast  This time, = however, the warning is from McAfee and I have seen e-mails with this = subject all over the place (fortunately I didn’t download them as I = assumed they were make money fast scams.) Please note that it’s spread by activating an attachment, NOT by just = opening an e-mail.  SCANPROT.DAT (The MS Word Macro Protection Tool) = should keep you from getting infected if you "forget" and "open" or = "launch" an infected attachment without scanning first. ——————————————————– E-mail Macro Virus Warning Issued By McAfee Associates      E-mail Macro = Virus Warning Issued By McAfee Associates=20   ****E-mail Macro Virus Warning Issued By McAfee Associates 02/28/97 = SANTA CLARA, CA, U.S.A., 1997 FEB 28 (NB) — By Wes Thomas. A new macro = virus called ShareFun.A is now proliferating on the Internet, according = to an warning announcement on the McAfee Associates Web site. Called = ShareFun.A, the macro virus spreads by infecting Microsoft Word 6.x and = 7.x documents on Windows and Macintosh platforms.=20  ShareFun.A is spread by e-mail message attachments. "If you receive a = message with the following subject or banner: ‘You have GOT to read = this!’ do not execute its attachment. Delete the entire message," = advises the Web site.=20  Here’s how the virus works, according to McAfee Associates: "First, the = macro virus will save a copy of itself. Then it will check to see if you = are running Microsoft Mail. If so, the virus will find 3 random people = in your mail list and send a copy of the infected document with the = following subject: "You have GOT to read this!"=20  "If MS Word is launched to read this attached file, the receiver will = become infected and above process will begin again."=20  See the ShareFun.A page on the McAfee Web site at = http://www.mcafee.com/support/techdocs/vinfo/v3333.html for more info.=20  (19970228/Reported by Newsbytes News Network http://www.newsbytes.com = /EMAILVIRUS970228/PHOTO)=20 =20  "The Pulse of the Information Age" Newsbytes News Network = http://www.newsbytes.com 24-hour computer, telecom and online news=20 =20 =20 Additional sources of information  Market Statistics – From Quote.Com =20  (c) 1997 Newsbytes

Response:

Oh, Gee,  I apologize, but was NOMAIL for a week and missed update on Susan G.  I’ve been following this net-friend’s situation.  Will someone please let me know what her "fix" was and how she is doing? Marilyn in beautiful Oakland CA — a great birding city!

Response:

Hi, Suzie.  Boy, I hope the surgery helps your shoulder problem!  I didn’t know they DID "shoulder replacement"….is it like hip replacement?? At any rate, I know how uncomfortable it can be to have to have someone help with the personal hygiene stuff.  Grit your teeth and bear with it, and the 4 weeks will pass soon.  Take good care… Ann

Response:

Susan – It’s really too bad that they have to take such a drastic step to "fix" you, but you have suffered so long with that shoulder I imagine ANYTHING that will reduce the pain you’ve been in will be welcomed. So I guess this is a positive step. You have all of my best wishes for an easy recovery. Hope you can get moved up on the schedule. Be of good cheer, Candace

Response:

Susan,         Surgery, under any circumstances, can be scarey, but at least now there’s a light at the end of the tunnel and it ain’t an on-coming train. I do hope that someone cancels tho so that you can get there even sooner. I’m sure you know by know you’ve got my prayers and I’ll do the candle bit the day of the surgery (so lemme know if the date changes).         It’s normal to be snappy when we hurt (don’t you be using that as blanket excuse now, hear? <g

) and I’m sure John understands this.  It’s

good tho’ that you two can talk about it – helps keep it from festering. I’m glad too that his meds are working and that he’s feeling better.  Only one sickie allowed in the house at a time – at least that’s my rule around here …         Hang in there girl and things should be a lot better in a short while.         Love, hugs n prayers,         P. At 00:46 4/29/97 +0300, you wrote:         <snip

       I want to tell the people who know me that I saw the shoulder doc today and my left shoulder is still fracturing even in the sling. So I am scheduled for shoulder replacement surgery on May 28 the soonest I could get.  but I didn’t think to have them put me on a list of cancellations so I’ll do that tomorrow.

        <snip

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~         ~~~~~~~       /             __|

 /   )  

   |     |  ~ /       MISSY    |     | ~~ /        /___   ~~~              | Missy says:  "Hi!  My name is No-No, Bad Dog!  What’s yours?"              PamY Spokesmom for Jennie who has MS. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Response:

- Hide quoted text — Show quoted text -Susan Guziejka wrote:

        Hi everybody from the land of cold and rain (STILL!) this is NH oh well.  I hope everyone is doing as OK as can be expected and Hi to the newcomers, this is a great group. sorry for not writing individually but I too have a problem with my arms esp the left. This is a great group for which to share, whine, be angry or happy etc.         I want to tell the people who know me that I saw the shoulder doc today and my left shoulder is still fracturing even in the sling. So I am scheduled for shoulder replacement surgery on May 28 the soonest I could get.  but I didn’t think to have them put me on a list of cancellations so I’ll do that tomorrow.         I’m told I might not get any more movement back in the arm but the pain should be greatly reduced.  Gosh I hope so.  Hurts!!!!!  I guess I tighten up and accidently snap at my husband when I don’t mean to. we’ve talked about it and I think he understands, and I’ll try harder not to sound snappish.         I will need home care after and there’s a woman who is working with me , saw her today she said it will be set up by the time I get home from the hospital.  yuck I’ll need help bathing and doing little things, but the doc said should only be about 4 weeks. Guess I can stand it.         Take care everyone.   Glad to see you’re on the mend, Sue. I knew you’d pull thru! Best wishes…

—                                 Paul Eberl                  "Try giving yourself credit for what you CAN do,                  rather than berating yourself for what you CANNOT"                                                  -JoAnn LeMaistre                                     =                                    | |                                __  | |                               (__@)   ______                               (__@)                               (__@)   _______                               (__@)__/

Response:

        Hi everybody from the land of cold and rain (STILL!) this is NH oh well.  I hope everyone is doing as OK as can be expected and Hi to the newcomers, this is a great group. sorry for not writing individually but I too have a problem with my arms esp the left. This is a great group for which to share, whine, be angry or happy etc.         I want to tell the people who know me that I saw the shoulder doc today and my left shoulder is still fracturing even in the sling. So I am scheduled for shoulder replacement surgery on May 28 the soonest I could get.  but I didn’t think to have them put me on a list of cancellations so I’ll do that tomorrow.         I’m told I might not get any more movement back in the arm but the pain should be greatly reduced.  Gosh I hope so.  Hurts!!!!!  I guess I tighten up and accidently snap at my husband when I don’t mean to. we’ve talked about it and I think he understands, and I’ll try harder not to sound snappish.         I will need home care after and there’s a woman who is working with me , saw her today she said it will be set up by the time I get home from the hospital.  yuck I’ll need help bathing and doing little things, but the doc said should only be about 4 weeks. Guess I can stand it.         Take care everyone. —————————————————————— – Hide quoted text — Show quoted text -

                     There is always a little piece            /_____/      of heaven in the disaster-area!     ==-=-/  o   o     ==   ( ==  ^  = ) =    === Luv Susan  ===     (          )  ====     ===  (          )           s_guzie…@conknet.com    ===-( (  )    (  ) )=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-== ==        (__(__) _(__)__)

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Dear Horacio, Just got back from a mini vacation out of state.  Just read the information you sent me.  I find it very interesting.  I’m going to research it more and talk to my neurologist about it.  Thanks for the great information I really appreciate it.  Have a great day. Angie

Response:

Hi BarbP, Glad to hear you are doing so well on Betaseron.  It definitely sounds more encouraging.  The information you gave me was helpful, and makes me feel better that they know a little more about  interferons with pregnancy and giving blood. Thank you very much. Enjoy your day. Angie

Response:

Greetings to all! This feels very strange posting to the group after being away for so long–probably lamented by a few, with applause by more, and indifference by others as in "Jeff who?!" In any event, like a bad penny or the IRS, I keep showing up. Doing a superficial scan of the current articles, I was very pleased to see some "veterans" still here and pecking away, like the erstwhile Brian Gee. Others look familiar and more did not but I’ll keep those to myself–I’d rather emabarrass myself by tacit ommision. In any case, do not take offense if I do not acknowledge (or disavow!) the prescence of others who might recall me but not the (immediate) reciprocal–memory is as much exercise as passive storage. In perusing some of the topics under discussion, I’ve already seen some "new" ones as well as "old" ones so I will spend a bit of time in catching up on some things. However, contrary to my reputation (who recall it), I’ll be as succinct as possible, at least while getting current. After that, no promises but as always, you *do* have a delete key! I AM extremely pleased to see the group is still here and seems as active and vigorous as it always was. For any "old-times" who care to drop a line, I am at (what is probably) a new e-mail address: jsh…@eazy.net Nice to be back. Jeff Shore

Response:

In article <6ccgur$…@news.eazy.net

, jsh…@eazy.net (Jeffrey Shore) wrote: Greetings to all! This feels very strange posting to the group after being away for so long–probably lamented by a few, with applause by more, and indifference by others as in "Jeff who?! Nice to be back. Jeff Shore

hi jeff! sooooooo glad you’re back!  hope all is well! peggy

Response:

In article <pabbott1-1802981322270…@user-38ld8qa.dialup.mindspring.com

,

  pabbo…@mindspring.com (peggy mcalpine) wrote:

In article <6ccgur$…@news.eazy.net, jsh…@eazy.net (Jeffrey Shore) wrote: Greetings to all! This feels very strange posting to the group after being away for so long–probably lamented by a few, with applause by more, and indifference by others as in "Jeff who?! Nice to be back. Jeff Shore hi jeff! sooooooo glad you’re back!  hope all is well! peggy

————— I’ve been a stranger, too!  Nice to hear from you, Jeff! —Jan S. —–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/   Now offering spam-free web-based newsreading

Response:

I’ve been a stranger, too!  Nice to hear from you, Jeff!

—Jan S.<< Jan, Great to see you back… Hope you are doing well!!  Btw, Did you change ISPs? Best, Judith ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ "The real voyage of discovery consists not in seeking new lands, but seeing with new eyes."                                                Proust ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Response:

On Fri, 13 May 1994 09:12:34 EDT Rosanne Kasian said:

Please let me know if this goes through.  I am a new BITNET user.  Thanks.

Read you just fine. Bob Puyear nu025…@ndsuvm1.bitnet

Response:

 Thought I just would take some time today, before the normal hectic  day starts, to thank everyone for all your responses in regards to  the spinal tap.  I am going to have it done on Friday and hopefully  after the results come in a form of treatment can be determined.My  neurolgoist told me that there are three forms of MS – one will go  into remission (which he is postive I don`t have because I just  never feel good), another is chronic progressive and another is  one where you stay where you are – you don’t get any better or any  worse.  He said the reason for the spinal tap is to determine  whether the MS is active and to determine the proper treatment.  Right now I have no medical treatment for the MS – only DayPro  for inflammation and Paxil for my nerves.  I am also going through  a stressful time at home with my older son and am trying real real  hard not to let his situation (which he brought on himself) upset  me.  Can anyone recommend any good literature I can purchase on  MS……….Rosanne

Response:

He said the reason for the spinal tap is to determine if the MS is active and to determine a final treatment.

I guess you didn’t read the first postings about this, Rosanne, but it’s bullshit.  If this is in fact what your neurologist said, your neurologist is either outright wrong or is lying to you for some reason. A spinal tap will do no such thing, and a spinal tap is not necessary to determine treatment for MS.

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sign off MSLIST-L

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HELP i cannot get off of this list!! my account has switched to a new system and my mail is all being forwarded but my return address is not the address i orrigionally subscribed from… i went back to my old account to signoff and the listserver sent me a huge document saying that the return address was different, etc. i am subscribed now from a third account and would like to have this account (@college.antioch.edu) and my previous main account (@antioc.antioch.edu) stop receiving this mail… i do not need 2 of everything and i cannot keep up with even one of everything at this address… please, anyone who knows how to help with this please let me know! julie james jja…@antioc.antioch.edu jja…@college.antioch.edu ju…@jumpriver.antioch.edu

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Pat: Disneyworld was largely accessible, several yeard ago. The newer MGM park .. People in chairs get priority seating on rides. But we did see seversl able people scamper in and out of aa chait. Gerry

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Rick: Your response and narrative is *deeply* moving! The ADA does not protect people in these situations! It strikes me that there are multiple levels of response to ms and disability. One is independent of medical procedures and hinges on our creation of an enabling environment. The other is to independently question the medical approach to MS (where I know that your interpretations have been incredibly-useful to me and others). I was going to save this for a report on last week’s trip to Israel and my meeting with Chanoch. But I feel that it reflects an insensitivity to disability which can make ms more difficult than necessary. ————————- When I left for Israel, I was deeply-concerned about over-exertion and the possible unavailability of services. After a full day of inquiry, my travel agent assured me that there would be an ‘aisle-chair’ on each leg of the Air France trip. I took adult diapers as a precaution. On the flight from Toronto to Paris (non-stop in a ’small’ 767, equipped with an ‘asle-chair,’ there were no difficulties. But, after a 5 hour stop in Paris, we boarded an Airbus 320 (?)  for a 6 hour flight to Tel Aviv. There was no aisle chair and I dutifully avoided any liquids. At 7:00 AM, in Israel, I found a wheelchair accessible washroom. Agony! Contacting 5 officials at Air France, and a Dr. Aziz, the company physician, I was assured that there would be a chair on the return flight. He would ‘prescibe’ it. There was not! Moreover, the entire staff of the Airbus, meticulously-explained to me that on such a short flight (6 1/2 hours) hrs) in such a small plane (a half-empty Airbus 320) there was no space for a huge aisle-chair (folds to the size of a small suitcase), which is easily accommodated in the larger 767 (sic .. reminded me of The Emporer’s New Clothes) which is ‘designed for long trips.’ I survived (moist). But, here was a case of a hight-priced airline (about $1400) which could not have cared less. The young woman in your tale can and should lodge a grievance with the ADA. What happened to her is unacceptable. As for me, I can write Dr. Aziz and hope that mt Kurtze rating has not worsened. Ater 5 days, I feel substantially unchanged.

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Hi, just joined this list, so I will introduce myself.  My name is John Campbell, live in St.Paul, MN.  Had M.S, for 12 years and was just permanent disabled by my company, were I was a research chemical engineer fior 16 years Good news? I just recieved news that my SS disability will start in June, so I will have lots of time to surf cyber-space. Well see you around, John Campbell

Response:

In article <9405121334.AA02…@MOLE.mmm.com

, "John C. W. Campbell" <jcwcampb…@MMM.COM writes: Hi, just joined this list, so I will introduce myself.  My name is John Campbell, live in St.Paul, MN.  Had M.S, for 12 years and was just permanent disabled by my company, were I was a research chemical engineer fior 16 years

[...] Welcome John.  This is a cozy little cyber family we have here. — ___________________________________________________________________________ ___         Brian Gee               |             g…@inland.com          |    I don’t like aging, it is the option         Inland Steel Research   |            I don’t like!         (219)399-2729           |    I have MS, but MS does not have me!         ________________________________|__________________________________________ __

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 This is a test.

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 Please let me know if this goes through.  I am a new BITNET user.  Thanks.

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Subscribe debbie lithgow

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UNSUSCRIBE  MS-LIST KAMALA BROWN

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MSList-l Repro

?????????????????? Bill – Levittown, NY E-MAIL to: hotwh…@specdata.com

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SET REPro

Response:

To all, Enjoy, Stelle The Unofficial Smilie Dictionary ——————————–   Your basic smilie. This smilie is used to inflect a       sarcastic or joking statement since we can’t hear       voice inflection over Unix.   Winky smilie. User just made a flirtatious and/or       sarcastic remark. More of a "don’t hit me for       what I just said" smilie.   Frowning smilie. User did not like that last       statement or is upset or depressed about something. :-I   Indifferent smilie. Better than a Frowning smilie       but not quite as good as a happy smilie :-

  User just made a really biting sarcastic remark.

      Worse than a .

:-  User just made a really devilish remark. ;-  Winky and devil combined. A very lewd remark

      was just made. Those are the basic ones…Here are some somewhat       less common ones: (-:   User is left handed %-)   User has been staring at a green screen for       15 hours straight :*)   User is drunk [:]   User is a robot   User is wearing sunglasses B:-)  Sunglasses on head ::-)  User wears normal glasses B-)   User wears horn-rimmed glasses 8:-)  User is a little girl -8 User is a Big girl :-{)  User has a mustache :-{}  User wears lipstick {:-)  User wears a toupee }:-(  Toupee in an updraft

:-[   User is a Vampire :-E   Bucktoothed vampire :-F   Bucktoothed vampire with one tooth missing :-7   User juust made a wry statement :-*   User just ate something sour ~  User drools :-~)  User has a cold :'-(  User is crying :'-)  User is so happy, s/he is crying :-@   User is screaming :-#   User wears braces :^)   User has a broken nose :v)   User has a broken nose, but it's the other way :_)   User's nose is sliding off of his face :<)   User is from an Ivy League School :-&   User is tongue tied. =:-)  User is a hosehead -:-)  User is a punk rocker -:-(  (real punk rockers don't smile) :=)   User has two noses +-:-) User is the Pope or holds some other religious office `:-)  User shaved one of his eyebrows off this morning ,:-)  Same thing...other side |-I   User is asleep |-O   User is yawning/snoring :-Q   User is a smoker   User smokes a pipe O-)   Megaton Man On Patrol!  (or else, user is a scuba diver) O User is an angel (at heart, at least)   Nyahhhh! :-S   User just made an incoherent statement   User is laughing (at you!) :-X   User's lips are sealed :-C   User is really bummed <|-)  User is Chinese <|-(  User is Chinese and doesn't like these kind of jokes :-/   User is skeptical C=:-) User is a chef @=    User is pro-nuclear war *<:-) User is wearing a Santa Claus Hat   Uh oh! (8-o  It's Mr. Bill! *:o)  And Bozo the Clown! 3:]   Pet smilie 3:[   Mean Pet smilie d8=   Your pet beaver is wearing goggles and a hard hat. E-:-) User is a Ham radio operator :-9   User is licking his/her lips %-6   User is braindead [:-)  User is wearing a walkman (:I   User is an egghead <:-I  User is a dunce K:P   User is a little kid with a propeller beenie @:-)  User is wearing a turban :-0   No Yelling!  (Quiet Lab) :-:   Mutant Smilie       The invisible smilie .-)   User only has one eye ,-)   Ditto...but he's winking X-(   User just died 8 User is a wizard C=}

;*{))  Mega-Smilie... A drunk, devilish chef with

      a toupee in an updraft, a mustache, and a       double chin Note: A lot of these can be typed without noses to       make midget smilies.   Midget smilie :]   Gleep…a friendly midget smilie who will gladly      be your friend =)   Variation on a theme… :}   What should we call these? (what?)   Happy :

  what?

:@   what?   Laughter :I   Hmmm…   Sad :[   Real Downer :<   what? :{   what? :O   Yelling :C   what? :Q   what? :,(  Crying []   Hugs and :*   Kisses |I   Asleep |^o  Snoring :-`   smiley spitting out its chewing tobacco :-1   smiley bland face :-!           " :-@   smiley face screaming :-#|  smiley face with bushy mustache :-$   smiley face with it’s mouth wired shut :-%   smiley banker :-6   smiley after eating something sour :^)   smiley with pointy nose (righty) :-7   smiley after a wry statement   smiley swimmer :-*   smiley after eating something bitter :-&   smiley which is tongue-tied :-0   smiley orator       smiley invisible man (:-(  unsmiley frowning (:-)  smiley big-face ):-)          " ):-(  unsmiley big-face )8-)  scuba smiley big-face =:-)  smiley punk-rocker =:-(  (real punk rockers don’t smile) +:-)  smiley priest :-q   smiley trying to touch its tongue to its nose :-e   disappointed smiley :-t   cross smiley :-i   semi-smiley   smiley singing national anthem :-p   smiley sticking its tongue out (at you!) :-[   un-smiley blockhead :-]   smiley blockhead :-{   smiley variation on a theme :-}   ditto {:-)  smiley with its hair parted in the middle }:-)  above in an updraft

:-a   lefty smilely touching tongue to nose :-s   smiley after a BIZARRE comment :-d   lefty smiley razzing you g-)   smiley with ponce-nez glasses :-j   left smiling smilely :-k   beats me, looks like something, tho. :-l   y. a. s. :-:   mutant smiley :-   undecided smiley   "have an ordinary day" smiley   winking smiley :-<   real sad smiley :-

  y.a.s.

:-z   y.a.c.s.   "my lips are sealed" smiley :-c   bummed out smiley :-v   talking head smiley :v)   left-pointing nose smiley :-b   left-pointing tongue smiley :-/   lefty undecided smiley   smilely smoking a pipe .-]   one-eyed smilely ,-}   wry and winking 0-)   smiley cyclops (scuba diver?) :-=)  older smiley with mustache :u)   smiley with funny-looking left nose :n)   smiley with funny-looking right nose :<    midget unsmiley :

   midget smiley

}:^#})  mega-smiley:  updrafted bushy-mustached pointy nosed smiley

with                        a double-chin     ha ha ~~:-(   net.flame |-)     hee hee O |-)   net.religion |-D     ho ho :-

    hey hey

8 :-I   net.unix-wizards     boo hoo X-(     net.suicide :-I     hmm E-:-I   net.ham-radio :-O     uh oh  

:-I    net.startrek

    nyah nyah 3:o[    net.pets |-P     yuk :-}     beard :-{     mustache :-#     braces :-X     bow tie :-Q     smoker <:I     dunce (:I     egghead @:I     turban     glasses B-)     horn-rims 8:-)    glasses on forehead :-8(    condescending stare     wink

:-<    mad

Drama       Comedy Surpise     Suspense 8-| Male    :-      Female  

-

Birth   |-O     Death 8-# Infinity        8 —<–{(@  Its a Rose!

Response:

where do we sign up??? What can I do? Nancy H – Hide quoted text — Show quoted text -Irwin Mortman wrote:

The opinion below by Michael Watkins seems to be very correct and warrants some help from the NMSS. Any help that you can provide would be appreciated. From: "Michael Watkins" <MICHA…@ksg1.harvard.edu To: "Autoimmune Research" <Autoimmune_Resea…@ksg1.harvard.edu Subject: Editorial: Berlex and Research on Antibodies Date: Wed, 28 Aug 1996 8:35:04 EST Reply-to: Autoimmune_Resea…@ksg1.harvard.edu Sender: Mai…@ksg1.harvard.edu Status: RO ***Disclaimer*** This editorial solely represents the personal opinions of the author. Time for Berlex Come Clean on Antibodies to Betaseron Does Betaseron lose its effectiveness over time? Are there are long-term health risks associated with developing antibodies to Betaseron? These are questions that we urgently need answered. The time has come for Berlex to share information with the MS community on the prevalence and impact of antibodies to Betaseron. Berlex has had the data necessary to do the analysis and issue a report for some time. Also, I have been told by a MS researcher whom I respect that Berlex asked other, independent institutions not to undertake research on antibodies because they wanted to do it "in house". As a community we need information on antibodies to Betaseron so that we can make informed choices about our treatment. If a large percentage of patients develop antibodies and if such antibodies neutralize the impact of Betaseron (these are the key questions we would like answered) then many of us might make different treatment choices. This is especially true since of the long term health impacts of developing antibodies to beta interferon have not been assessed. Also, questions of this importance should not be left to Berlex. As a corporation, Berlex has a vested interest in selling more Betaseron and has no incentive to complete this research in a timely manner. As a community we should pressure Berlex and, if necessary, the FDA to complete this research and issue a report. We should also strongly encourage the NMSS to undertake independent research on this important issue. Michael Watkins Irwin Mortman Voice 513-891-7359 FAX 513-891-8186 E-Mail mort…@iac.net Cincinnati, OH

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MSList-l Repro

Response:

Jack: I took Halcion for 6 years. So, apparently did George Bush. I stopped because a few of the milllions of ‘users’ had a number of side effects. If your wife has no side effects and takes Halcion only occasionally, I do not see any problem. I take 2.5 mg. of vavlium (1/2 a 5 mg. tablet) when I must sleep, and never groggy or habituated. What also works, is winding-down early. Read a boring book or watch a movie (Gerry)

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Tom: I drove with $500 hand controls until I needed to drive my scooter onto a van, rather than constantly dis and re-assembliing the thhing. But there are nifty devices for storing a wheelchair in a roof box, pushing a button and having it slide down, ready to use. This costs about $2000in Toronto and is cheaper than a van. But I love my adapted van. I understand that the state vocational rehab folks, in the USA, will pay for adaptations if you need them for work. Someone from Mass., who is staying with us drives an adapted car with *foot controls.* (She has impaired hands) But those are skills my feet don’t have and never did. BTW – How does your garden grow?

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?mslist-1 subscribe

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Kathleen: It sounds like a new career. I was thinking of "Murder She Wrote" (that little town that has more murders ,,), but then I thought o-f some good activities for camp. Tom can be script coordinator.

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Do we *trust* Tom with this script?  Actually, isn’t the town that Angela’s character is from some perversion of Mendocino?  We could run upo *up* there during camp, but we’ll have to hire someone reliable to drive   .  (The coast drive up there is grueling.) I don’t want Mai Tais, Brian, I want strawberry daquiries . Oh!  If we camp in the fall in G’ville, I know a place that serves *real* chicken fried steak, quite a feat for NorCal.  We’ll leave Doug M. in the car . (There’s a 24-hour Safeway in G’ville with a complete deli for those midnight corn dog and candy bar runs .

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Now wait a min Kathleen, If they fry the chicken in fresh oil I’d try it:-) Doug M.

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*clusters*  … Rick posted an excellent comment on cluster-research … Chanoch: In Israel, is there a difference in MS occurrence among European and North African Jews? Have any Ethiopian Jews, in Israel, ever been diagnosed with MS? A friend, who is a MS caregiver and a Holocaust surviver, claims that Orthodox Jews (alluding to diet) never contract MS. I do not place any credence in any of his pronouncements. But?  <Gerry

Response:

IS THERE ANY FEEDBACK YET (POSITIVE OR NEGATIVE) ON BETASERON USE? My wife got her info package yesterday requesting her to commit or defer her position in the pecking order. I’d like to hear some testimony from folks that have actually used the drug. If there is additional info needed from me, please ask. I would like to get background information like, how long Betaseron user was afflicted and what affect, if any, (positive, negative, side affects) are coming about from it’s use. Thanks.

Response:

In article <MSLIST-L%94042221310…@TECHNION.TECHNION.AC.IL

Kevin Radez <kra…@VNET.IBM.COM writes: IS THERE ANY FEEDBACK YET (POSITIVE OR NEGATIVE) ON BETASERON USE? My wife got her info package yesterday requesting her to commit or defer her position in the pecking order. I’d like to hear some testamony from folks that have actually used the drug. If there is additional info needed from me, please ask. I would like to get background information like, how long Betaseron user was afflicted and what affect, if any, (positive, negative, side affects) are coming about from it’s use. Thanks.

I’ve been on BETASERON for about 1 month and still feel very puny (aches, pains, chills, headaches, fatigue).  I only had my first MS symptoms 14 months ago and have had 8 xs since, and now am readily mobile only with a chair, so I’ll put up with feeling like s**t for a while if this stuf works.  Too soon to know it it will. Carolyn Z. Standard disclaimer — get what you need.

Response:

On Fri, 22 Apr 1994 15:28:39 EDT Kevin Radez said:

IS THERE ANY FEEDBACK YET (POSITIVE OR NEGATIVE) ON BETASERON USE?

I will temper any advice I give with the disclaimer that I am NOT a doctor, nor do I play one on TV (or the InterNet!). I am an MS patient, and a user of BETASERON, for 2 months now. The literature states that an injection site reac- tion is the most common side reaction to BETASERON use, and I have had these, though they have been mild. Rubbing the site prior to and after the injection helps. Another common side effect is known to be a flu-like syndrome,which hap- pens to me (*VERY* mild), but isn’t a real problem since I do my injecting at night and go to bed.  Of course, one’s results can vary tremendously. My wife’s chief complaint is that my temperature goes up, and disturbs *her* sleep. Other people have had other complaints, ranging from blood-cell-count issues (you MUST get routine blood work taken monthly) to fear of the needles. Of course these are up to you (pl.) to resolve. My experience isn’t 100% typical, but I have always felt good about asking my MD about these issues, and would reccomend this to you as well. The actual in- jection isn’t all that bad (1cc, just under the skin, almost impossible to miss the target), and hurts less than many of the cat scratches I get when I play a little too rough with my kitties. Of course, the results are what count. And, for me, the results have been great. But then again, with MS, at least the E/R types like me, it is nearly impossible to say when things work, unless you have years of data. I’m just hedging my bet that this,"Larry the human pin- cushion" routine will result in fewer episodes, thus less scarring, this a delay in the E/R  to C/P transition, if it indeed occurs. I am basing this on my Neurologists advice and discussions with other physicians. There are some who do not want the pain, the risk, and the high bills that this entails. I am fortunate to have insurance for the $$$, the pain is truly minimal, and the risk…? Who knows. I think we all must agree that life’s a sort of crap shoot, and that the best we can hope for is to do what we can when we can do it. I guess BETASERON is my way of doing that. So far, so good.But again that’s just me. Please keep us informed! We certainly wish you and your wife the best, no matter what you you decide to do about this issue. And try to keep your sense of humor. Of all the MS remedies and treatments I’m aware of, that one seems to be among the best. —                          : THE OPINIONS EXPRESSED ABOVE ARE THOSE OF Larry E. Cravetz            : WRITER AND NOT THOSE OF ROHM AND HAAS CO. Rohm and Haas Phila. Plant  : My opinions come from another dimension, (RSA…@ROHVM1.ROHMHAAS.COM : and hence are irrelevant to anyone else… NIHON E IKITAI YO!      KIPPU GA ARIMASUKA?      ITADAKIMASUKA??

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Here we go with one more introduction. Kevin Radez, Raleigh NC.  My wife, Alice, was diagnosed June ‘79 after a trip to Aruba (the heat problem everyone talks about). Since ‘79, it’s been a slow progression of relapsing/remitting to her current condition. Scenario sounds closest to Carol Soltau so far, especially the last paragraph of her introductory note. Alice’s best times now keep her barely out of a wheelchair. Alice is now 40 years old (Carol made you count). Just since Friday on this forum I’ve read alot of familiar symptoms, probably she’s experienced all of them so far. I’m assuming some of the abbreviations/acronyms are: E/R=exacerbating/remitting (Alice’s condition)(relapsing/remitting) C/P=chronic progressive. Alice’s lottery number is 52,697 and we got our sign-up package last week on Thursday. Hence, my registration on this forum and request for Betaseron experience. Of course, I expect it to have the same effect on my wife that Carol Soltau experiences, but Alice is just ready to burst with excitement, now that she’s been offered the chance to try the treatment. I’ll not rain on her parade though. She realizes that it’s a crap shoot, but I wish her expectations weren’t quite so high. There’s no way I could suggest to her to pass up the chance, so she’s filling out the paperwork as I type and it’s going in the mail ASAP. Does this Betaseron card look OK? Alice say’s it gives us up to 55 days to pay without any interest penalty. That gives a pretty good cushion to get the insurance money before having to pay. Are there any pitfalls in the signup process? I wasn’t sure my first append to this forum got to anyone until Larry Cravetz replied with a piece of my original append attached. Thanks Larry. Oh, and Chanoch forced me to introduce myself. One additional note of interest, Alice’s older sister by about a year, also has E/R MS, but has deteriorated slower that Alice. They were both born in Summit, NJ. Sorry, but that’s not a slam on Summit. I’ll be watching the forum. Kevin.

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Cathy – Did you attend the Society for Disability Studies meeting, last year in Seattle (I gave a paper there on paratransit system. Barb (my relevant other who makes ms livable) and I were impressed by the accessibility of public busses in Seattle. Again, I appreciate your infomative posts. Thanks!

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aurelio bonavia. request information

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IS THERE ANY FEEDBACK YET (POSITIVE OR NEGATIVE) ON BETASERON USE? My wife got her info package yesterday requesting her to commit or defer her position in the pecking order. I’d like to hear some testamony from folks that have actually used the drug. If there is additional info needed from me, please ask. I would like to get background information like, how long Betaseron user was afflicted and what affect, if any, (positive, negative, side affects) are coming about from it’s use. Thanks.

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Hi Carol, You wrote:

I am wondering if my server is working.  Could someone please let me know?  Thank you, Carol C.

I received this on the 9th, at 9:10 pm/ est. ((((((hugs)))))))00000

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I am wondering if my server is working.  Could someone please let me know?  Thank you, Carol C.

You came through to Alaska Karen

Response:

Looks OK to me At 08:10 PM 1/9/96 -0600, you wrote:

I am wondering if my server is working.  Could someone please let me know?  Thank you, Carol C. Carol Crandall, RRA ccran…@mail.coin.missouri.edu

————————————- on changing the world . . . "It’s easier to put on slippers than to carpet the whole world"                Stuart Smalley ————————————- Tammy Peterson

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stelle, haven’t heard from you in awhile.  hope all is well!

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Hello to one & all, As an individual with M.S., I have explored many ‘complimentary’ medical treatments. I have stuck with Traditional Chinese Medicine because it has proven to me that it can have a positive effect, & because it has a much longer track record than Conventional Western Medicine (3-5,000 years). However (never being satisfied), I’ve also launched into ‘Bee Venom Therapy’. I’ve read Charles Mraz’s book (Health & the Honey Bee) and am using Pat Wagner’s book; ‘How well are you willing to Bee’, for the direction it provides in terms of; Sting site locations; Vitamin supplementation; et al. Is anyone else out there doing B.V.T., &/or following Pat Wagner’s book? I would love to get in touch with anyone who has any (past/present) experience with Apitherapy for M.S. Please contact me if you do – I would appreciate it immensely! Many thanks, Ted Tyrrell e…@octonline.com

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Hi, folks. Does anybody knows something about "Cat=B4s Claw" (uncaria tormentosa) ?.=  I ask this, because a quack of Mexico told me that is good for MS. Take care. Horacio.

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Don’t know much.  But a friend told me it stimulates the immune system.  Given  that my immune system, when stimulated, is likely to eat my own myelin, I’d be  careful of it as I would of echinacea and other such stimulants. – Hide quoted text — Show quoted text -

Does anybody knows something about "Cat=B4s Claw" (uncaria tormentosa) ?.=

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POST: This is to let you know that #LifeChallenges has moved to a new location. It is a private channel – word of mouth – so only pass it along to those who really need the channel, not those who are going to hurt it, the people in it or me. Now remember this channel is private so you will not find it on a listing, just /join #LifeChallenges. Send an e-mail request stating who you are, etc., so that you can have access to this channel that was made explicitly for you and others like yourself. If you treat it good, it will treat you good. Therefore it is up to all of us to keep this channel free of treachery, pain, pretenders and the like. This is your safe Haven from the rest of the world and it takes everyone to keep it that way. Even if it’s empty, stick around and STAY AND CHAT with anyone who may drop in. Thank you—————–Cindy Callahan

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So who needs Dr. Ruth? We’ve got Cindy!! Ward

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POST: The magical bath routine: You can pick and choose but these are the ingredients I use and normally would tell someone. This routine is good, soooo good, so wonderfully soothing. It’s relaxing, pain-relieving, sensual, good for your heart, your soul and your mind as well as your body and your hair. It’s a wonderful treat for sleeping better, for anxiety relaxation, for pain relief, for bedtime preparations for those who need it and at times, another can join you. I use Vaseline bath oil beads, all three scents: this gives you the aromatherapy and the very relaxing and soothing blue-green water; a nightlight or candle so that you are in the dimness of the bath, another ingredient for relaxation; a cassette player using those tiny little speakers instead of earphones and play soft, instrumental type music – I use YANNI- every song brings a different feeling and it’s never ever the same; liquid anti-bacterial soap to pour in to make bubbles and to soften your skin as well as killing germs ; run the water as hot as you can possibly take it, pull the curtain across to make it like a steam bath, too, and just treat yourself. Your best thoughts come here and your mind can rest here, too. And if you’re hurting, whether physically or emotionally, you can release it here for the music will be your guide. You will sleep better and awaken more refreshed in the morning. This is also especially good for people with chronic pain, so that the aches and pains are just released from the body. If you plan on lovemaking, this is perfect to get your body released of pain, loosen those joints, take away the aches in the muscles so that lovemaking will not be so painful to you or wear you down and out. In this case don’t take your meds until after your bath. And for an extra little delight, you can have your mate join you in the tub after you’ve had your 45 minute soak and as awkward as it may seem, it can be a very relaxing and intimate time. Just lean back and relax.  To treat them, when you get out of the tub, let them have it!! Enjoy!! Cindy Callahan

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