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Anyone On Procarin?
Question:
Hi, I appreciate all the responses on Procarin. There is one thing I still would like to know and that is if anyone is taking Procarin? If anyone is taking Procarin I would appreciate hearing your experiences with it. Thanks, Tina!
Response:
It just about drove me nuts with intense itching and didn’t do me any good at all. – Hide quoted text — Show quoted text -Tina Elizardo wrote:
Hi, I appreciate all the responses on Procarin. There is one thing I still would like to know and that is if anyone is taking Procarin? If anyone is taking Procarin I would appreciate hearing your experiences with it. Thanks, Tina!
Response:
Tina, 7 months using Procarin. Improvement in all sx’s, some have totally resolved. Resolved symtoms: MS "hug", shallow, difficult breathing, weak, raspy voice, bladder & bowel problems—all gone. I can yell again, much to the dismay of my family. Improved symptoms: Most improved is stamina and fatigue. I can go longer and stronger. Bone crushing, mind numbing fatigue has been replaced by "tiredness" that resolves with a short rest. I indulge in a nap when I feel like it, before, naps were necessary. Overall strength–even my skeptical Neuro. noted improved strength, coordination, endurance and fine motor skills. Spasticity reduced to the occasional toes curling thing. Quit taking Zanaflex and now take magnesium, calcium and niacinamide. I believe these supplements help to control the little bit of spasticity I still get now and then. Balance is still "iffy" but has definitely improved. (working on balance now that I’m better able to get into and hold some light, "easy" Yoga positions again) My walking is still not good. Cane or walker dependent when out of the house. Rarely use it when I’m home, though, and that’s a good thing…I was ready to order a scooter when I started taking Procarin. One less thing to worry about, now… While I still want to walk independently, I guess it’s fair to say that my ability to walk has improved, too. But, in all honesty, my legs have been most severely affected by MS and have been the slowest returning. I’m doing PT now (for a non-MS related lower back problem—2 blown disks) and the extra exercise, massage and stuff they are doing has really helped me see improvements re: gait, fast. No side effects other than the occasional itching which is taken care of with a little hydrocortisone cream. (comes with the prescription) I don’t really have anything negative to share…so far so good. I did have 2 flare ups since I started using Procarin, but both were shorter and I recovered more fully with less residual diability than I ever have from previous flare ups. Procarin doesn’t control the progression of MS, just helps with the symptoms. (I’m on Copaxone, too, 18 months now) 7 months ago I couldn’t sit Indian style. Heck, I couldn’t sit up unsupported for long. Tonight, while watching ER, not only did I sit Indian style, I also grabbed each ankle and raised my leg (straightened out totally) up to my head. Flexibility was something I thought I’d lost forever. So those are my experiences, in a nut shell. Feels good to feel good for a change. I was finally "officially" dx’d 3 yrs ago, probably have had MS for 10 years. Sorry so long and gabby, but I’m thrilled to be able to lift my legs to my head.
Response:
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