Question:
Hi Gary & Beth, I Nordic Track for about 25 minutes almost everyday. Take Care Shell Gary & Beth Dagastine wrote: – Hide quoted text — Show quoted text -
Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
Response:
I attend a weekly exercise class led by a wonderful physiotherapist who specializes in MS and other neuro illnesses. We stretch, we do range of motion exercises, we do strengthening exercises; our PT challenges us all, those who are in wheelchairs up to ambulatory without aids, some of us do standing exercises, others do only sitting. There is a fairly wide variety. One thing she is particularly good about is individual attention: she makes sure we do the exercise properly. We all have a good time, it is as much a social event as it is a physical one. But the purpose is to work on all those muscles, to keep what we have, to make it better if we can. Gaylan Gary & Beth Dagastine wrote in message <785mah$…@faile.nidlink.com
…
– Hide quoted text — Show quoted text -
Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
Response:
In article <785mah$…@faile.nidlink.com
, "Gary & Beth Dagastine"
<garyb…@nidlink.com
wrote: Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
hello! i swim (well walk!) in the pool to help my muscles. good exercise! peggy
Response:
In article <785mah$…@faile.nidlink.com
,
"Gary & Beth Dagastine" <garyb…@nidlink.com
wrote: Does anyone do any form of excercise so we don’t lose our muscles????
Yes, I do yoga, walk, and recently started working with weights. SF ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
Response:
On Wed, 20 Jan 1999 14:44:09 -0800, "Gary & Beth Dagastine" <garyb…@nidlink.com
wrote: Does anyone do any form of excercise so we don’t lose our muscles????
Absolutely. I do water exercises every day. The water keeps me cool, maintains my balance, and lets me work muscles that otherwise would cramp up. Yesterday I woke up in severe pain with tight muscles everywhere. I stretched a bit, using a chair for support. I was still too unsteady to walk without falling. In the evening, my husband took me to the pool where I spent an hour working with bouyant weights, stretching, and jogging. I’m still walking very tentatively today, but I feel stronger and more energetic. This isn’t the whole solution, but it’s a big part of it. Water exercise is the biggest blessing in my life right now. This fall, in the middle of an exacerbation and unable to drive, I signed up my husband for the YM with me. He drives and we both are happier and stronger. Kate
Response:
Hi Wobbles: First, let me say this, I think perhaps you might wish to see a Physical Therapist to offer the best advise in establishing a firm exercise program geared with you in mind. I know we all have our own ideas on how and what works for us, but I think it might be a whole lot better if you went through your neurologist. Ask him to send you (if he already hasn’t) to a reputable PT who has vast knowledge of MS) I went for five years and learned the most valuable lessons in My particular MS and how to override many of my symptoms. This program worked for ME… I think int he long run you will be a much happier camper and stronger as well! Laura K. S. If you feel you are getting nowhere, call your local MS Society and ask them for a name of a PT.
Response:
Hi Wobbles, I exercise just about everyday. I do it from my hospital bed. The only time that I have missed was when I was in the hospital. And even then I tried to do a bit. In my opinion and my opinion only, I believe exercise helps. Without it I probably would have been dead by now. The exercises help my heart and my lungs. So if you can do them, by all means do it. Even if it’s just a few a day. Over time your body becomes used to it. And you’ll be able to increase the quantity. I’m living proof of that. I’ve been doing exercises for over 3 years now. <smiling
And the quantity has definitely increased.
Take care, Dawn
Response:
Hi, What kind of exercises do you do at the gym? Dolores – Hide quoted text — Show quoted text -Janine Reese wrote:
Wobbles, I belong to Golds Gym and am a firm believer that exercise is the key. It doesn’t always work as well as I would like. At times I get real frustrated because my body doesn’t work like it should with the MS but I feel it (the body) would quit working altogether if i stopped. I have been diagnosed 10 years ago with CPMS (chronic Progressive) I am fully retired at 47 years old and am in an electronic wheelchair in order to get around. I still believe that exercise is the key. Janine Harrisburg, Pa
Response:
One problem I have had with doing exercises in the water is that, despite place this being run by a woman who knows a lot about ms, the water was too warm and I had to be taken out of there in a wheelchair. The last time was the worst. It totally paralyzed by left leg and I had to be helped getting dressed. It was awful. I knew it would go away in a few hours, but I kept thinking, IS THIS THE FUTURE? (I know that when you get overheated it effects your weakest part.) Scary. Kind of makes me afraid to go back. They try to keep a happy medium between being warm for arthritis people and cool for ms people, but sometimes they screw up. Anybody else have this happen to them? Kathi
Response:
Exercise yes, but stretch, stretch, stretch! Flexibility = mobility. – Hide quoted text — Show quoted text -peggy mcalpine wrote in message …
In article <785mah$…@faile.nidlink.com, "Gary & Beth Dagastine" <garyb…@nidlink.com wrote:
Response:
One thing that should be watched when we exercise is the heat. PWMS tend to get further exacerbations due to the heat. So there are some good way sto exercise without overheating, including: Swimming Yoga (Kathy SMith’s Yoga Basics is good, I use it) Tai Chi LIGHT bicycling (breeze cools you a bit) Resistance muscle building techniques Stretching And if you can afford a cooling vest, you may be able to do the more exhaustive forms of exercise like group sports. Me, I still can play soccer (goalkeeper, less sweat, less overheating), I rollerblade (although it’s occasionally gotten me the return of L’hermitte’s sign), and I do my exercise videos like Kathy Smith’s Yoga. I’ve also done the Richard Simmons tapes, they’re made for people who are at a beginner’s level, and usually involve less sweat and less coordination than most, making it ideal for someone with MS. Hope this helps! Cyberhugs, Cyd :)
Response:
On 22 Jan 1999 01:25:55 GMT, kamatth…@aol.com (KaMatthews) wrote:
One problem I have had with doing exercises in the water is that, despite place this being run by a woman who knows a lot about ms, the water was too warm
In one of my scarier lives, I was the director of a YWCA with a swimming pool. My days were filled with cries of pain from arthritic women and worries that the babies in baby swim were being boiled and the kids who were too hot and the lap swimmers who were VERY definitely too hot and also the lifeguard was late. There was too much chlorine and too little chlorine and people’s eyes hurt and people knew that infections loomed just below the water’s surface. It’s an endless task trying to balance temperature and chemical and people. I suggest you find a pool where there are lots of lap swimmers and a swim team. Our YMCA has a large pool with two swim teams. The temperature is kept reasonably cool and not lowered for meets. This is less comfortable for folks who do not move around in the water. When you get in, start moving slowly and built up your warmth. By the way, even with a daily program that I’ve worked at for some years, I usually get out of the pool with shaky legs. I take about five minutes for cool down stretching at the end of my hour — you may need more than that. Move slowly, stretch, hold the stretches until your muscles and body cool. (In the water.) Kate
Response:
In article <36a89bc2.266934…@news1.ibm.net
, kat…@ibm.net (Kate Murphy)
writes:
I suggest you find a pool where there are lots of lap swimmers and a swim team. Our YMCA has a large pool with two swim teams. The temperature is kept reasonably cool and not lowered for meets. This is less comfortable for folks who do not move around in the water. When you get in, start moving slowly and built up your warmth.
I need to go to Physiotherapy Associates because their pool is very handicapped friendly — steps, no ladder to go down in, and bars everywhere around the pool and inside it. They have saved me from falling many times. The Y would just have a normal pool. Kathi
Response:
Hi Janine, Thanks for the info. I would love to go to the gym. I have very good upper body strength and would love to keep that. My right leg is on the fritz. I am in an electric wheelchair and can transfer in and out of it by myself. I do not have anyone to go with me to the gym and help me with my legs nor can I afford a personal trainer. I know I should exercise but I am just to tired when I come home from work. I need to get my act together and get off the pity pot. Dolores – Hide quoted text — Show quoted text -Janine Reese wrote:
Dolores, I work my arms on different machines on one day and work my legs on the next day. I have to have help getting off and on equipment at times but I have a significant other who does that for me. I go to the Gym a minimum of three times a week. My left leg doesn’t work well at all. Freezes up at the knee. Doesn’t want to bend in either direction. My left foot won’t bend at all. My significant other forces it to move, it hurts like hell, but I am hoping to get some movement back in my left leg and foot. I am in an electric wheelchair, but I have to keep plugging on because I refuse to give up. Ask anything you want and if I can provide any assistance I will. Thanks for questioning my workout. Janine Harrisburg, Pa
Response:
Delores, Thanks for your response, if anything at all try to keep your upper body strength going by using weights at home. Don’t give up on the exercise because you only sell yourself short when you do. Janine Harrisburg, Pa
Response:
KaMatthews wrote One problem I have had with doing exercises in the water is that, despite place this being run by a woman who knows a lot about ms, the water was too warm and I had to be taken out of there in a wheelchair. Hi Kathi, I can certainly identify with that. When I was walking with a cane and going to the rehab for physio, one of the treatments were exercises in the pool and also going in the whirlpool. Both were no good for me. I don’t exactly remember the temperature but the pool was the worst for me. They had to use a lift to get me out. And I would not be able to walk for a while. So what a waste of time sitting there until my legs came back. This was before I started using a wheelchair. So you can imagine the fright I had when my legs wouldn’t work. So it was ‘later’ for the pool. <smiling
No more of that! Take care, Dawn
Response:
Does anybody know how Noreen is? Noreen are you listening I’m worried about you. I don’t post very often I’m just not feeling up to it. I know Noreen is very depessed, and I know how bad it can be, I must fight it myself. Please don;t give up on depessed people it can be a very rockey road. I wish we could all be like Dawn(happy birthday). I have m.s. seizure’s and hepititis c it’s been very hard to go from do all mom to bedridden mom.Some people have a felling that you can just pull yourself up by your bootsraps don’t complain and there goes the depression.I’m sorry it’s not that easy. If you are listening Noreen I hope you are better, and if you are not I pray you will be. angels are with you
Response:
Noreen, we have not heard from you for several weeks. How are you? any improvement in your condition? You were considering having surgery the last I remember. I hope you are reading this and that you will post a reply. Gaylan
Response:
ANGELSAREHEREwrote Please don;t give up on depessed people it can be a very rockey road. I wish we could all be like Dawn(happy birthday). Hi Angel, Like Dawn!?! <laughing
Angel I get very depressed. I just don’t come on
when I am. As a matter of fact I’m a bit depressed right now. I’m back again fighting the battle of my life. Since I came out of the hospital I haven’t been receiving my nursing care. They refuse to come. My catheter hasn’t been changed. My bladder hasn’t been irrigated. My bandage is soaked right through with blood. The caregiver changed it for me. I spent most of yesterday and today dictating a 14 page letter that is going to be sent to the complaints department of this damn organization. I asked Dixie to read it for me to see how it is. Bless her heart!! <smiling
I have the feeling this fight is just beginning. This is going to be the fight of my life. It never ends!! So I’m depressed!! <smiling at you
Actually fed up!!
Take care, Dawn
Response:
In article <Hrsr2.1632$b8.944…@hme2.newscontent-01.sprint.ca
, "Dawn
Jenkins" <da…@sprint.ca
wrote:
| I have the feeling this fight is just beginning. This is going to be the | fight of my life. It never ends!! So I’m depressed!! <smiling | at you
Actually fed up!!
Dawn, Get ‘fed up’! There is energy in the emotion! Direct this to the miscreants that are supposed to be helping you. Aa always, you have my prayers. — Take care James (#11)
Response:
On Tue, 26 Jan 1999 18:43:37 -0500, "Dawn Jenkins" <da…@sprint.ca
wrote: >I spent most of yesterday and today dictating a 14 page letter that is going >to be sent to the complaints department of this damn organization. I asked >Dixie to read it for me to see how it is. Bless her heart!! <smiling
Dear Dawn, Read that 14 page letter very carefully. Then cull it down to two pages. If you have a list of dates and problems, put them in very, very dispassionate language and in a list in backwards order — starting with the latest problem and working to the earliest. Attach your list to the letter. Be careful not to "blast" people but remain as logical and reasonable as you can. You do not want to get labeled as a crank or nut. "On December 1, 1998 Jane Jones was scheduled to be at my house at 10 a.m. to irrigate my catheter, bathe me, and help me dress. She arrived at 2 in the afternoon, did not bathe me, and failed to irrigate my catheter." "On December 2, 1998, Jane Jones failed to wash her hands or use a clean syringe to irrigate my catheter." It is easy to put all your emotions into a letter. Don’t. This is a time to take the high ground and get something changed for you. Don’t give them a chance to dismiss you as a complainer or a crank. Love, Kate
Response:
Hi Kate, Thank you so much for your advice. <smiling at you
I really appreciate it.
But believe it or not those 14 pages are all facts. No emotion is into that. What had happened was, when I was in the hospital the social worker gave me a list of phone numbers. And out of those numbers was an organization that assists in filing complaints. I am assigned to an advisor there. And we work together on this. The complaint is drafted up by me. He looks over it. He tells me what corrections need to be made. And what to concentrate on. And when it’s perfect he gives me the green light. And I got that green light today. <smiling
I am not alone on this. I am being represented by an organization. Everything is cc’d to my advisor. Even the reply from the organization. My advisor is with me on this all the way til the very end. I had to break down my complaints into about 5 different sections. It’s a specific format that has to be used. And the organization that I’m complaining about, I’ve been a client of theirs for over 10 years so it’s a lot of information. The sexual misconduct and negligence go way back to the early nineties. There is more than one person (nurse) involved. Plus their supervisors. Plus doctors. Plus hospitals. Plus lawyers letters. Plus a doctor’s letter. Plus a video camera. But all facts!! Nothing could have been left out of that. It’s a very very big thing. This is major business! I didn’t want it to get this far. But now I have no choice. I just hope that my health can last through all of this. Any way it was sent out today by fax. It was sent to the complaints department of that organization. And cc’d to her boss who is the Director General of the organization. And also cc’d to my advisor. They have 45 days to reply. If they don’t I move up the ladder. So I’ll see what happens. Thanks again Kate for your input. I really appreciate it. <smiling
Take care, Dawn
Response:
Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
Response:
Many msers do aquatic exercises. In fact many chapters offer such classes. The Long Island chapter of the MS Society also offers classes in yoga & T’ai Chi as well as aquatics There is also n exercise tape made by a woman with MS, Catherine MacRae available for purhase on the internet at http://www.gentlefitness.com Jayne
Response:
On Wed, 20 Jan 1999 14:44:09 -0800, "Gary & Beth Dagastine" <garyb…@nidlink.com
wrote: Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
Wobbles, I am in a yoga class tailored for MS’ers. It’s fun, challenging and presents the participants something to smile about. Donn
Response:
Gary & Beth Dagastine @ @Does anyone do any form of excercise so we don’t lose our muscles???? @ @Wobbles @ Yes! Exercise as hard as you can, and increase repetitions continually. Drinking ice water and eating the ice will increase strength momentarily (yes, it does- at least for me, wheelchair bound for 9 years). Without exercise, my stamina is greatly reduced, as is general strength. The RCAF exercises are very good, and as function was lost, I improvised. My routine today bears little resemblance to my routine in 1978, but the philosophy is the same- use it or lose it. Unsophisticated exercises with canned goods, 2-lb hand dumbells, and simply propelling myself around the house are valuable parts of my regimen. Cal Clifford — ========================================================= Homepages = http://www2.acorn.net/~aa197/, http://www.osfn/org/~ai640/ http://www.detroit.freenet.org/~at347/, http://www.scn.org/~bj867/ =========================================================
Response:
Hi Lemmoncake, Thank you so much for this reference. I am looking for some exercices that are good for me because I need them. And who can understand better than a person with MS. Janette ———- – Hide quoted text — Show quoted text -
From: Lemmoncake <lemmonc…@AOL.COM To: MSLIS…@techunix.technion.ac.il Subject: Re: Ms excercise Date: mercredi 20 janvier 1999 18:04 Many msers do aquatic exercises. In fact many chapters offer such
classes. The
Long Island chapter of the MS Society also offers classes in yoga & T’ai
Chi as
well as aquatics There is also n exercise tape made by a woman with MS, Catherine
MacRae
available for purhase on the internet at http://www.gentlefitness.com Jayne
Response:
Wobbles, I belong to Golds Gym and am a firm believer that exercise is the key. It doesn’t always work as well as I would like. At times I get real frustrated because my body doesn’t work like it should with the MS but I feel it (the body) would quit working altogether if i stopped. I have been diagnosed 10 years ago with CPMS (chronic Progressive) I am fully retired at 47 years old and am in an electronic wheelchair in order to get around. I still believe that exercise is the key. Janine Harrisburg, Pa
Response:
peggy mcalpine wrote:
In article <785mah$…@faile.nidlink.com, "Gary & Beth Dagastine" <garyb…@nidlink.com wrote: Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles hello! i swim (well walk!) in the pool to help my muscles. good exercise! peggy
I’m doing arm chair exercises using a video entitled (surprise) "Armchair Exercises" and also Tai Chi when my legs allow me to be upright. Tai Chi is supposed to be very good for balance. Irene
Response:
I have recently discovered "Sit and Be Fit", a public TV exercise program shown all over the country – check your listings. It’s a wonderful tone and stretch program that you can do from a chair or bed, as well as standing. Along with my other activities: water aerobics, recumbent stationery bike, walking, etc., I love this half hour every day. The instructor is a nurse and really knows how to help people get the most out of their exercises.
Response:
Dolores, I work my arms on different machines on one day and work my legs on the next day. I have to have help getting off and on equipment at times but I have a significant other who does that for me. I go to the Gym a minimum of three times a week. My left leg doesn’t work well at all. Freezes up at the knee. Doesn’t want to bend in either direction. My left foot won’t bend at all. My significant other forces it to move, it hurts like hell, but I am hoping to get some movement back in my left leg and foot. I am in an electric wheelchair, but I have to keep plugging on because I refuse to give up. Ask anything you want and if I can provide any assistance I will. Thanks for questioning my workout. Janine Harrisburg, Pa
Response:
JoanneC592 wrote:
I have recently discovered "Sit and Be Fit", a public TV exercise program shown all over the country – check your listings. It’s a wonderful tone and stretch program that you can do from a chair or bed, as well as standing. Along with my other activities: water aerobics, recumbent stationery bike, walking, etc., I love this half hour every day. The instructor is a nurse and really knows how to help people get the most out of their exercises.
Is it national? We get it at 9am on PBS and I know it’s made in Spokane, but I thought only those in Wa got it. Glad to hear it’s national. Irene
Response:
Irene LaVergne wrote:
Is it national? We get it at 9am on PBS and I know it’s made in Spokane, but I thought only those in Wa got it. Glad to hear it’s national. Irene
Hi all…I’m new here<to this NG
and am in southern Ontario and the
Buffalo NY station runs this show in the afternoon. PBS stations purchase individual programs according to viewer wants/needs/requests durring fundraising. Some stations may have it and others not. Debbie in Ontario — ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Klement Family "Education is what survives when Darryl, Debbie, what has been learned has been Kathleen, Nathan & forgotten" Samantha B.F. Skinner in "New Scientist". e-mail- klem…@icom.ca or d_klem…@hotmail.com Canadian homeschool page: http:\www.flora.org/homeschool-ca/ Ont. Federation of Teaching Parents: http:\www.flora.org/oftp/ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Response:
Janine Reese wrote My left leg doesn’t work well at all. Freezes up at the knee. Doesn’t want to bend in either direction. My left foot won’t bend at all. Hi Janine, Maybe you should get your left knee checked out. Sometimes when a knee locks it could be something other than MS. Maybe you could have hurt it while exercising. You could have a torn cartilage or a dislocated knee. All the best to you! <smiling
Take care, Dawn
Response:
DAWN, THANKS FOR THE INFO, I’LL CHECK IT OUT WITH MY DOCTOR. JANINE HARRISBURG, PA
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Hi Folks: there is no one way of applying exercise therapy t MS patients. Each person should consult a physio professional and work out a program for themself. I do a series of 100 situps from a sitting position and then leg stretches from a lying position. I find this works pretty well for me but am open to suggestions for improvement. Cheers, Gerry At 02:44 PM 20-01-99 -0800, you wrote: – Hide quoted text — Show quoted text -
Does anyone do any form of excercise so we don’t lose our muscles???? Wobbles
Response:
Categories: Yoga Basics | 
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I know that yoga is much more than moving your body into different stretching positions. I have applied a certain degree of discipline to my yoga session to ensure I am staying focused on relaxing in each position, breathing properly throughout the workout and blocking out other people in the classroom. I know I have a long way to go since there were a few times I was distracted during the session, but I am confident that with time and persistence I will be receiving the full benefits from yoga. I see myself as a student, learning as I go along and with time my hunger for the knowledge of yoga’s history and benefit’s will grow throughout. Yoga is something I want to encorporate into my life forever. Not many people begin something with the intent of doing it for life. So at this point, I need to start small and work my way through yoga slowly so that I do not become discouraged and that I am consistent to ensure I will continue to do this on a regular basis. I’m not doing this as a trendy thing, or to be walking around in a yoga outfit and talk to my friends about how I’m "going to yoga" so as for the arguement about who is power yoga and who is this or that, does not apply to me, for I am incompitent when it comes to yoga. I simply want something easy to start with that will help me stick to a yoga practice and I think it’s a person’s choice as to what type of yoga they feel comfortable practicing and where they will find the most benefits from it. Again, thanks to everyone for pointing me in the right direction, I’m sure I will be back with more questions and need your support throughout this change in my life!!! I am going to try the "Art of breath and relaxation" and "Yoga for beginners" by Rodney Yee. We will see where this gets me! 
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